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Showing posts from August, 2014

Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...

There Goes Summer!

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Once again everyone in North Dakota is lamenting the near end to another busy summer that is quickly fading away along with the hot summer sun. A couple of days ago we had an unusually cool late August day and I actually had to put a sweatshirt on Faith before going outdoors. I was reminded this would soon be the norm every day and it wouldn't be long before we are digging through the closet to find hats and mittens. Where DID summer go? This seems to be the question everyone asks each year as if there might be just one summer that lasts forever. I think most North Dakotans would relish at least one year-round summer considering winter weather lasts over half the year. But alas, it's never going to happen so we can either move to Arizona or grin and bear our near-approaching cold weather. Spending time with family - me, my sisters and dad at Perkins For us, we had a summer of transition as I quit working my full-time job at the health insurance company. Both my husband ...

Five of Faith's All Time Favorite Books

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This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   We've been reading books to Faith ever since she was a baby. When she was little, she had to wear an eye patch for 30 minutes a day in the hopes it would help strengthen her eye muscles so they would no longer turn inward.  Reading a book to her while she was wearing the patch was a great way to keep her distracted from having to wear it. Even after she no longer had to wear the patch, she continued to love being read to. Reading to Faith when she was little As Faith got older, we had hopes she would learn to read on her own. She is ten and that still hasn't happened. We continue to pray and try to find ways to help her be able to read. Her music therapist  is trying to do all she can to help us with this endeavor. We know her vision is fine, but we think her eye muscles might not be working...