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Showing posts from October, 2017

Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
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Faith's Fourteenth Birthday

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Last year I had a tough time getting used to the idea that my daughter had somehow turned into a teenager. This year, I'm having a hard time believing that my daughter is 14 years old. 14! How in the world did that happen? Admittedly, her birthday started a little rough with Faith waking up saying she didn't want to celebrate. I chalked it up to her being really tired due to her long day on Tuesday which had begun at 7:30 a.m. If you know Faith, you know that is really early for her. Somehow in the midst of her crankiness, we managed to get her up and into her chair for her first feeding of the day without the occurrence of any major battles. When Faith heard her auntie Joh singing Happy Birthday to her while leaving a message, her mood shifted to being happy and joyful. We called Joh back, who had taken time during her lunch break to make the birthday call. We also talked to her grandparents in Canada, which helped as well. After the phone calls, she decided she d...
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