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Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
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Ready for Summer (And Some Rain)

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Every year in May, Faith and I run into the same problem. It's hard to focus on school this time of the year! I know most families are probably in the same boat. What makes it extra hard for us is that Faith's homeschooling group, Inspire Collective, ends the last week in April.  In her mind, Faith is already done with school! This beautiful weather does not make doing school any easier. However, it is great for doing some fun activities, like the things we have done this weekend. On Fridays, Faith and I usually take a trip to the library. It was during this past Friday that I realized that the Band Day Parade would pass close by the library later in the evening. We have gone in the past and Faith loved the marching bands! This might sound strange considering she gets startled by loud noises, but for some reason, she just loves them! She also really likes parades. It was the perfect evening for one.  Faith and I enjoyed "dog watching" and seeing all the different ki...
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