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Showing posts from November, 2018

Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
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Faith's Thankful List 2018

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In the past when Faith and I have done her annual Thankful List, I would write down the items as she told them to me. This year, I thought it would be fun for Faith to be sitting right next to me so I could show her how to do a blog post. So here we are again giving thanks to the Lord for His abundant blessings, which is the whole point of Thanksgiving!  One reason I like this tradition so well is because since Faith has a feeding tube, it's hard for her to get excited about turkey and all the other food that accompanies this special day. This year, Faith says she is especially THANKFUL for the following people and things in her life: Good Friends  Faith has made some wonderful friends at a faith-based homeschooling group she attends once a week called Inspire.  This year, she invited the girls from her class to the park for her birthday. (It was near miraculous that we had a 60-degree day with no wind at the end of October!) She had such a wonderful time. As her...
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