Posts

Showing posts with the label September

Appointments and More Appointments

Image
One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...

Faith's 73-Day NICU Stay

Image
September is  NICU Awareness Month . For those who don't know, NICU is an acronym for Neonatal Intensive Care Unit. According to  World Metrics  50,000 premature babies in the United States receive care each year in the NICU.  The average NICU stay for a preemie is 25 days. Honestly, that number surprises me, as I thought it would be much higher than that. Along with preemies, full-term babies born with certain health issues, such as respiratory distress, jaundice, and other kinds of infections receive care in the NICU.  Tiny Faith in her isolette at Mayo  But for Faith, whose untimely birth consisted of an emergency C-section 11 weeks early, it took 73 days before she was discharged. Those 73 days were a major emotional rollercoaster! And for many reasons, one of which was being nearly 600 miles from home as Faith was born at the Mayo Clinic in Rochester, Minnesota. (You can read what led up to that on my post,  October 4, 2003: A Day I'll Ne...

5 Fall Things Faith Loves

Image
I swear we just flipped the calendar to August and now September is right around the corner. How can that be? School has started for some of Faith's cousins and the air is a bit brisk during the morning hours.  Fall is definitely my favorite season, but for Faith, I think she likes Spring better. She loves it when winter is finally over and there are no more threats of snowstorms to ruin her plans! That being said, she is looking forward to some things next month and during the upcoming fall season.  1. Fall Leaves/Fun Flavors One of my favorite parts of transporting Faith back and forth to her therapies and day program is that we get to cross the Missouri River twice a day. We love looking at all the trees by the river, the boats in the water, and even some wildlife like antelope, wild turkeys, and lots of birds.  Along with the pretty leaves, there is a cool crisp feel to the air, and the mosquitoes are long gone. Lots of fun flavors make their comeback in coffee shops ...

Happy Belated Anniversary to Us!

Image
We got married on Rosh Hashanah (which is the Jewish New Year). So, because our day wasn't going so well on the 7th of September, which is the day we got married, we decided to celebrate today, which is the date of this year's Rosh Hoshanah. For this anniversary blog post, I was going to write something elaborate and in-depth about some things I have learned in being married for 15 years (and all that I am continuing to learn). However, every time I tried to construct it in my head, it just wouldn't come together. I wanted to share some of our highs and lows, some of the great memories and not-so-great ones. I wanted to be an encouragement to other married couples who might be struggling. Instead, I wrote my husband a letter thanking him for his constant support, encouragement, and patience. I'll spare you all the details, but I also told him that I'm glad in the midst of the many challenges we have faced these past 15 years, we have simply refused to give up...