Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...

Just Ducky

Faith has the sweetest, kindest, most generous instructional aides EVER! Recently, the school's 6th graders held their annual rummage sale. I of course forgot to send money along for Faith to buy something so her aides took it upon themselves to buy something for her.

During the winter, I normally put these little pink booties on over Faith's orthotics to keep her feet warm, but this year they were pretty tight and hard to get on. The booties are soft and have Velcro on the sides, so they were easy to get on her feet even over her orthotics. 

I can't find any boots like that anywhere and it's impossible to get regular boots on over her orthotics. Well, thankfully her aides found the perfect solution to keep her little feet warm this winter!


Her new slippers are just ducky!

Everyone gets a real kick out of Faith's duck slippers!

Comments

  1. Those are by far some of the cutest thing's I've seen! She's very blessed to have such generous aides. I know it must be difficult finding boots for her. I'm pretty sure you can find some online that are specially made. I looked on a website because I saw this post, and there's a thread that asks about shoes for kids with splits and orthotics. A place called 'Clarks' is specialized in such shoes. Here's the thread where they talk about it, maybe it can be of some help for future needs.

    http://www.netmums.com/coffeehouse/advice-support-40/special-needs-disabilities-support-502/325316-school-shoes-go-over-splints-i-e-ankle-foot-orthoses-afos.html

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