One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges. For instance, besides CP, some of other Faith’s health issues include: · Gastroesophageal reflux disease (GERD) and other digestive issues · Scoliosis · Bowel and bladder incontinence · General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
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Fighting the Flood
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It is the last day of school for kids here in Bismarck but all of the excitement for summer is being drowned out by flooding from the Missouri River. Residents of Bismarck/Mandan have been fighting hard all week to keep the waters at bay.
Today, the Bismarck mayor called for even more volunteers because over two million sandbags are still needed. While it looks grim for some, they continue to hold out hope.
man-made dikes are becoming a common site in Bismarck-Mandan
Yesterday, the public was told of a plan to help save most of south Bismarck and others who live near the river from severe flooding. There are many residents though who live outside of their proposed plan. Some of them have already gotten water in their homes, others are packing up and leaving while others continue to sandbag. This weekend it is supposed to rain and on Monday, the Army Core of Engineers will be releasing more water from Garrison Dam. It's hard to know what will happen after that.
I'm thankful we are here in North Bismarck where we don't have to worry about flooding. But we are worried about our friends and loved ones who are fighting to save their homes and who are looking elsewhere for a place to live. It also saddens me they had to close the zoo and evacuate all of the animals. That may seem minor, but I know how much Faith was looking forward to going there for many visits this summer.
Residents are constantly being told not to panic. Despite their fears, the community has pulled together to help those in need. Yesterday on the news, a National Guardsman said when he got the call to duty, he was so excited to help that he had his boots on before he even got off the phone. Last night, people met together at a local church to pray. It is amazing that the best in people is brought out in the worst situations.
Please continue to volunteer and do what you can. If you have physical limitations, make food for sandbagging crews, watch people's kids for them and most of all pray. For some it may seem like a lost cause but with God all things are possible.
I added the following video after I found it on YouTube. It really captures what Bismarck/Mandan as a community is dealing with.
One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges. For instance, besides CP, some of other Faith’s health issues include: · Gastroesophageal reflux disease (GERD) and other digestive issues · Scoliosis · Bowel and bladder incontinence · General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
September is NICU Awareness Month . For those who don't know, NICU is an acronym for Neonatal Intensive Care Unit. According to World Metrics 50,000 premature babies in the United States receive care each year in the NICU. The average NICU stay for a preemie is 25 days. Honestly, that number surprises me, as I thought it would be much higher than that. Along with preemies, full-term babies born with certain health issues, such as respiratory distress, jaundice, and other kinds of infections receive care in the NICU. Tiny Faith in her isolette at Mayo But for Faith, whose untimely birth consisted of an emergency C-section 11 weeks early, it took 73 days before she was discharged. Those 73 days were a major emotional rollercoaster! And for many reasons, one of which was being nearly 600 miles from home as Faith was born at the Mayo Clinic in Rochester, Minnesota. (You can read what led up to that on my post, October 4, 2003: A Day I'll Ne...
Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction. Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
I was struck in the floods in Cumbria, England last year.
ReplyDeleteI can sympathise with what the people of Bismarck are going through; You are soo right in that the community needs to pull together.
"You may have the greatest bunch of individual stars in the world, but if they don't play together, the club won't be worth a dime.”
At the very least, Teams can share the burden and divide the grief that the flood may have caused.