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Showing posts from November, 2009

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...

Faith's Party Invitation and Her Mom's Anxiety

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I opened it with curiosity . Faith's name along with our address were on the outside of the envelope with a first name scrawled in the left-hand corner. I smiled as I read the contents. It was Faith's first invitation to a party. As I looked at the time and date of the party I felt almost relieved that we would have a good excuse for Faith not to attend. The Halloween party was scheduled for October 25 th - the same day Faith would be having her birthday party. Sure, I was excited about Faith being invited to a party by one of her classmates. But it also caused a little anxiety wondering how the details were going to be worked out. How handicapped accessible was their home? If there were going to be lots of kids attending, how would Faith handle all the noise? Was the Halloween party going to be too scary for her? Well, not to worry because Faith wouldn't be going anyway. A few days later, before I had gotten a chance to call Faith's classmate's mother to tell ...