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Showing posts from October, 2023

A Not So Fun 4th and Tough Week for Faith

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The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...

Faith Is No Longer a Teenager

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Last week on the 25th, Faith celebrated her 20th birthday, which means she is no longer a teenager! That morning as we drove to her day program, she asked, "Mom how did I get to be 20 so fast?" In some ways, the time has crawled by, but in other ways, it has gone so incredibly fast.  Faith turns 20!  When it came to planning something for her birthday, she told me she didn't want a party. I knew though, that as soon as I didn't plan one, she would change her mind. And that's exactly what happened! A few days before her birthday she was asking me who is coming to her party. I was like, "What party?"  I had decided to just have a small gathering at our apartment. I'm glad I didn't opt for a bigger one at a larger venue, mainly because of the weather. Up until last Wednesday, we had been having the most beautiful fall ever. The colorful leaves were still on the trees and the grass was still green. We had gone to the pumpkin patch on October 19th and...

Quick Trip with the Parents to Pembina Gorge

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When my dad told me he'd like to see Pembina Gorge sometime, I told him I had never heard of it. (I don't feel bad as I know many other North Dakotans who hadn't heard of it either!) In order to help make his dream a reality, I tried to schedule a weekend that my caregivers could come here to look after Faith.  We settled on the first weekend in October. My mom decided to come as well. She said it would be the only nonmedical trip the three of us had taken together! We all hoped the fall foliage would be out in full force that weekend!  In preparing to go, I had typed up 3 pages of instructions for Faith's caregivers, one of whom was a loyal respite care provider who has been with us for over 3 years and also my sister.  Both of them are very experienced and resourceful, but I printed out the instructions, nonetheless. Faith has been trying a new kind of food so that was a bit of an adjustment for them.  After dropping Faith off at her day program in the middle of a ...