Faith's Mom's Blog

A snowy Century Avenue Last Tuesday at this time, most of North Dakota was getting blasted with a historic blizzard that lasted 3 days. We have experienced blizzards before, but this was probably the worst most people in the state had ever gone through. For me, it brought back memories of the catastrophic blizzard that occurred at the beginning of April in 1997. At that time, I lived in Fargo.  What made that storm so bad is that many parts of the state had already received 100 inches of snow throughout the winter. That wasn't the case this year, as the central and western parts of the state have had severe drought conditions. While most people were thankful for the moisture this blizzard brought, it didn't come without its challenges (especially for the ranchers who were in the midst of calving). The good news is the storm was not unexpected. As a result, people could make preparations in advance. The most I needed to do to prepare was make sure we had plenty of groceries and...

Just recently I was able to go away for the weekend - for fun! For the first time in 18 years, I was able to travel to another city, stay overnight, and not have any doctor's appointments or procedures. And what made it even better was going with my sisters!  Faith was well-looked after by respite care. She even had a friend come over to visit and her grandparents, too! Of course, getting away did not come without a challenge or two.  The day before leaving, as I was cleaning the entire apartment and getting ready to pack, a staff member at Faith's day program told me her feeding pump was not working. I only had an hour before I had to pick her up so I cruised down to our DME provider and asked if I could get a loaner pump since hers was not working.  Unfortunately, they no longer carried the type of feeding pump she uses, so I needed to get a whole new system. This required me to learn how to use it and then make sure Faith's respite staff and her day program staff was g...