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Showing posts from January, 2012

Faith and Friends

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If I were to ask people who know Faith what one of her favorite activities is, I am pretty sure they would all say the same thing: socializing. Faith absolutely loves people. She has been a social butterfly ever since she was little.  She has always enjoyed going to therapy because she loves meeting new people, even those in the waiting room. Doctor appointments are also great because she gets to meet new nurses. She pretty much makes friends wherever she goes!  Faith and friends blowing out birthday candles when she turned 7  During her first years in school, she easily made friends with her classmates. Sadly, though, as the kids got older and since she was limited in her mobility, these friendships faded. When we pulled her out of school altogether in order to homeschool her, the hardest part was not having any friends.  Thankfully, we lived in a building that had a community room. Faith and I would often hang out there for a change of scenery. She would sit and wa...
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Conscious Sedation - A New Experience for Our Brave Girl

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I am so very proud of both Rob and Faith. I only wish I could have been there with them. Today was a new experience as Faith's medical providers used conscious sedation while administering her Botox shots. I was pretty bummed that I couldn't be there. January marks our busiest month at work so taking time off is limited. I already have to take time off on Monday for an appointment. So, there I was this morning at work wanting to be with Faith and praying that all would go well. Rob and Faith had to be at the hospital at 8:30. Faith's pediatrician was there, along with a few other of Faith's favorite medical providers. She was especially happy to see PBS playing on the television. Seeing something familiar helped to keep her calm. Rob and I have struggled in the past wondering if conscious sedation was the right thing to do for Faith. It just didn't seem like giving her sedation drugs every time she got Botox was very good for her. In the past during her Botox ...
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Saying Goodbye...Again

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Last month, we had a sad surprise - that Brittnee, a respite care worker who has been with us for a year and a half, was leaving. Once again, it was time to say goodbye to someone who had become like a part of the family.  It's hard when these respite care girls leave, although it is completely understandable. More often than not, they are college-aged and in serious relationships which lead to engagement and then marriage. There have been three wonderful girls we have gotten the privilege of knowing through respite care services. And I am continually impressed with their maturity, professionalism and most of all, their great care-taking skills with Faith. While it is hard for us to see them go, it is great that there is e-mail, Facebook and even Skype so we can keep in touch. With all of today's technology it makes the goodbye seem not so final. So, to our amazing young ladies who we are blessed to know through respite care - we wish you the best in al...
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