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Showing posts from January, 2012

Dance, Dance, Dance All Month Long

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Faith has had a super fun month with many opportunities to dance! At the beginning of April, she began her last session of adaptive dance at Northern Plains Dance. There are 5 sessions throughout the year, and then they take a break over summer and resume in the fall. Faith at an adaptive dance class  The adaptive dance classes take place Friday evenings. I pick her up a little bit early from her day program so that she has a chance to rest a bit before heading off to dance. Then once she gets home, she likes to watch the whole week of Wheel of Fortune, which we record every night.  On the second Sunday of April, Faith participated in the Northern Plains Dance student showcase where all of the students demonstrated the skills they have acquired throughout the year. Faith was excited to be on stage again at the Belle Mehus!  This year, the adaptive dance class performed to the song "Golden." They were able to do the 4:00 show instead of the earlier one, which made it pos...
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Conscious Sedation - A New Experience for Our Brave Girl

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I am so very proud of both Rob and Faith. I only wish I could have been there with them. Today was a new experience as Faith's medical providers used conscious sedation while administering her Botox shots. I was pretty bummed that I couldn't be there. January marks our busiest month at work so taking time off is limited. I already have to take time off on Monday for an appointment. So, there I was this morning at work wanting to be with Faith and praying that all would go well. Rob and Faith had to be at the hospital at 8:30. Faith's pediatrician was there, along with a few other of Faith's favorite medical providers. She was especially happy to see PBS playing on the television. Seeing something familiar helped to keep her calm. Rob and I have struggled in the past wondering if conscious sedation was the right thing to do for Faith. It just didn't seem like giving her sedation drugs every time she got Botox was very good for her. In the past during her Botox ...
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Saying Goodbye...Again

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Last month, we had a sad surprise - that Brittnee, a respite care worker who has been with us for a year and a half, was leaving. Once again, it was time to say goodbye to someone who had become like a part of the family.  It's hard when these respite care girls leave, although it is completely understandable. More often than not, they are college-aged and in serious relationships which lead to engagement and then marriage. There have been three wonderful girls we have gotten the privilege of knowing through respite care services. And I am continually impressed with their maturity, professionalism and most of all, their great care-taking skills with Faith. While it is hard for us to see them go, it is great that there is e-mail, Facebook and even Skype so we can keep in touch. With all of today's technology it makes the goodbye seem not so final. So, to our amazing young ladies who we are blessed to know through respite care - we wish you the best in al...
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