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Showing posts with the label holidays

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Faith's 4th

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Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction.  Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
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We Made It Through December

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Every December, I look for Christmas shows to record and then watch them after Faith has gone to bed. I love curling up with a fuzzy blanket and a cup of tea with the Christmas tree lights on, watching a holiday program. Usually, there is Christmas music involved!  This year, one of the shows I watched was Little Big Town's Christmas at the Opry . It was really good, and one of the most memorable performances was the country band's rendition of the Merle Haggard song, " If We Make It Through December ."  When I heard them sing that song, I resonated with the title. Faith and I had both come down with COVID. Before that, I was just getting over a bout of the stomach flu. (Thank goodness Faith didn't catch that!) In between sicknesses, Faith and I managed to make it to The Nutcracker, but that's about the only thing we did in the days leading up to Christmas.  We made it to our 7th annual Nutcracker performance!  One thing I missed that I was very disappointed a...
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A Blessed Christmas Season

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Some people start their Christmas season the day after Thanksgiving. Not us! We actually wait until about the second week of December, when we go to the Nutcracker, put on by Northern Plains Dance . (Plus, this year, both of us were still recovering from covid in November!)  Every year, Faith loves to see her friends perform onstage and visit with them afterward. We have been going to this performance since 2017, and it never ceases to amaze us! It's been so fun to watch the growth of her ballet friends as they take on more challenging roles each year.  Enjoying the Nutcracker for the 6th year in a row!  One new thing that I was able to do this year was go to the Lorie Line Christmas Concert. She has been coming to Bismarck for 30 years and I have always wanted to go, but it has never worked out. But then a friend of mine asked if I could help transport her grandma (who uses a wheelchair) in our van to the concert. In exchange for helping, she bought me a ticket to the co...
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Faith's Fun-Filled 4th of July

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Faith and I had the best 4th of July ever! We started the day bright and early to go to the parade in Mandan. We haven't been there for many years, so I was surprised that she wanted to go. I think maybe it was because she heard everyone at her day program talking about it and making their own plans.  Faith's grandpa went along with us, as well as her auntie Dawn (my youngest sister). Thanks to Dawn's connections with people who live in Mandan, we were able to park the van at her friend's house and then he drove us down to Main Street. Then, thanks to another friend of hers, we were able to enjoy the parade underneath a canopy right in the front row. I could not be more grateful to her friends for making it such so convenient for us! One reason I was glad not to go to the parade in the past, was all the planning, parking, and walking it takes, not to mention sitting in the sun for almost 3 hours! Someone might wonder why it takes all that just to go to a parade.  Mandan...
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Our Shining Star

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I know I have said this many times before, but I can't reiterate how thankful we are for the Inspire homeschooling group that Faith joined. Not only has she made some wonderful friends, but her social skills have also improved, she has more confidence, and she has learned a lot in science and history. Besides all of that, she has gotten to take part in their annual Christmas program, which she absolutely loves. Last year, she played the part of an angel and had a few lines to say. This year, she played the one and only bright shining star. Not only did she get a narration part, for which she had to memorize and say an entire paragraph worth of words, but she got to say the best line of the play, "SO MANY STARS!" This year's program, Starry Night, Noisy Night , told the birth of Jesus from the perspective of the animals that were present in the stable that night. There were sheep, chickens, cows, and of course a donkey. There were also shepherds, wise men, and ange...
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Faith's Thankful List 2018

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In the past when Faith and I have done her annual Thankful List, I would write down the items as she told them to me. This year, I thought it would be fun for Faith to be sitting right next to me so I could show her how to do a blog post. So here we are again giving thanks to the Lord for His abundant blessings, which is the whole point of Thanksgiving!  One reason I like this tradition so well is because since Faith has a feeding tube, it's hard for her to get excited about turkey and all the other food that accompanies this special day. This year, Faith says she is especially THANKFUL for the following people and things in her life: Good Friends  Faith has made some wonderful friends at a faith-based homeschooling group she attends once a week called Inspire.  This year, she invited the girls from her class to the park for her birthday. (It was near miraculous that we had a 60-degree day with no wind at the end of October!) She had such a wonderful time. As her...
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