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Showing posts from April, 2024

Faith's Rockin' 23rd Birthday

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Faith began planning her 23rd birthday party about 3 months ago! Everyone sort of laughed at that time and tried to tell her she had a ways to go before her birthday. Now, just like that, it's over!  Faith's cake and some of the decorations  She really enjoyed the surprise birthday party we threw for a friend of ours last year at Pizza Ranch, so she decided that's where she wanted her party. When I asked her what she wanted for a theme, she totally surprised me by saying, "Bon Jovi!" (We listen to a lot of Bon Jovi in the van!)  I was all onboard with her Pizza Ranch plan, because that would make things pretty easy for me. I wouldn't have to worry about feeding everyone. The only drawback was that we could only get a room that accommodated about 25 people, so this year, we weren't able to invite the whole church and many others. (Faith has a lot of friends!)  The birthday girl!  On the other hand, it worked well to have somewhat of a smaller party as she h...

2024 So Far: Blessings and Challenges

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This year has certainly been a mix of blessings and challenges. Faith kicked off the New Year by getting another UTI. Along with that, she somehow managed to break a bone in her wrist and had increased anxiety due to some staff changes at her day program.  Also, she had gotten a new chair last August and we've already had to make numerous repairs and adjustments. All of these things have resulted in many extra appointments with doctors and specialists, including a urologist, orthopedist, psychiatric nurse practitioner, and DME technician.  Thankfully, the broken bone in her wrist healed on its own! We also got some good news that the slight curve in her spine has not gotten any worse and she doesn't seem to be having any pain in her back or hips.  We still don't have answers for the recurrent UTIs, and she is recovering from another one as I write this. I have tried a few different supplements to prevent them but haven't found the right one yet.  Hitting a huge miles...