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Showing posts from July, 2012

Faith's Adaptive Skiing Adventure

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I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...

The Baclofen Pump Decision

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Even though Faith's x-rays have shown that her hips are stable and have not come any further out of her sockets (especially her left hip), we decided to move forward with the baclofen pump . We felt this was the right decision and that Faith would benefit if the pump helped to decrease her tone. After making the decision, Rob sat down with Faith and explained to her that she was going to be getting something called a baclofen pump and that she was going to have to be in the hospital.  She of course, was not too happy about this news and every now and then she would let us know it by yelling, "I'm not going to get a baclofen pump and I'm not going to the hospital." Rob called the clinic to get the ball rolling and ended up leaving a message. We were surprised when no one returned our phone call right away.  When we finally did hear from them, they gave us the surprising news. They had made a managerial decision at the clinic to stop putting baclofen pumps in ch...

Celebrating Independence

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I was so proud of Faith today - she went to children's church all by herself! The few times Faith had gone before, she didn't want to go by herself, so I went with her. Going in with her last week was sort of a bummer because I missed a really great sermon on the kinds of things we were going to be doing in Heaven. But this week, Faith went by herself and when I peeked in the window, she was talking away to the children's church teacher. When I went in to get her, she told me very excitedly that she had just learned a lesson. When I asked what about she said, "A lesson about God." Rob and Faith celebrating Independence Day at the Capitol Building I think Faith is getting a boost of confidence because she has been going in for prayer at the Healing Rooms by herself too. When we go to the Healing Rooms, we write down our prayer requests, give them to whomever is at the desk and then go into a prayer room to be prayed over by those on the Healing Rooms team. Wh...