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Showing posts from July, 2012

Faith's Blended Diet and Other Things that Help with Her Digestion

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This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time!  Faith receiving food through an NG tube in the NICU.  Grandma giving Faith a bottle when she was 2 months old.  After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...

The Baclofen Pump Decision

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Even though Faith's x-rays have shown that her hips are stable and have not come any further out of her sockets (especially her left hip), we decided to move forward with the baclofen pump . We felt this was the right decision and that Faith would benefit if the pump helped to decrease her tone. After making the decision, Rob sat down with Faith and explained to her that she was going to be getting something called a baclofen pump and that she was going to have to be in the hospital.  She of course, was not too happy about this news and every now and then she would let us know it by yelling, "I'm not going to get a baclofen pump and I'm not going to the hospital." Rob called the clinic to get the ball rolling and ended up leaving a message. We were surprised when no one returned our phone call right away.  When we finally did hear from them, they gave us the surprising news. They had made a managerial decision at the clinic to stop putting baclofen pumps in ch...

Celebrating Independence

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I was so proud of Faith today - she went to children's church all by herself! The few times Faith had gone before, she didn't want to go by herself, so I went with her. Going in with her last week was sort of a bummer because I missed a really great sermon on the kinds of things we were going to be doing in Heaven. But this week, Faith went by herself and when I peeked in the window, she was talking away to the children's church teacher. When I went in to get her, she told me very excitedly that she had just learned a lesson. When I asked what about she said, "A lesson about God." Rob and Faith celebrating Independence Day at the Capitol Building I think Faith is getting a boost of confidence because she has been going in for prayer at the Healing Rooms by herself too. When we go to the Healing Rooms, we write down our prayer requests, give them to whomever is at the desk and then go into a prayer room to be prayed over by those on the Healing Rooms team. Wh...