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Showing posts from September, 2016

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Trying to Walk by Faith Not by Sight

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This past year has been one of the more challenging ones we've had in light of caring for our daughter. As she has gotten heavier, I found lifting her has presented opportunities for straining my back. Thankfully, I’ve been able to receive healing through both prayer and the hands of a wonderful friend who is also a massage therapist. At the same time, I know I can no longer lift Faith as I once used to. Faith hanging out at the eye doctor. She received a good report and still does not need glasses!  Another huge change is that this past spring, Faith officially became a woman. While this is usually something for girls to celebrate, for us it provided a new set of challenges, including major PMS symptoms. Her sensitivity to loud noises heightens during this time and her already high tone kicks into overdrive, causing her to be very uncomfortable in her chair. Because of her discomfort, we have spent a lot of time sitting on the couch together. A benefit of this for me is I...
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