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Showing posts from October, 2017

Faith's Adaptive Skiing Adventure

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I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...
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Faith's Fourteenth Birthday

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Last year I had a tough time getting used to the idea that my daughter had somehow turned into a teenager. This year, I'm having a hard time believing that my daughter is 14 years old. 14! How in the world did that happen? Admittedly, her birthday started a little rough with Faith waking up saying she didn't want to celebrate. I chalked it up to her being really tired due to her long day on Tuesday which had begun at 7:30 a.m. If you know Faith, you know that is really early for her. Somehow in the midst of her crankiness, we managed to get her up and into her chair for her first feeding of the day without the occurrence of any major battles. When Faith heard her auntie Joh singing Happy Birthday to her while leaving a message, her mood shifted to being happy and joyful. We called Joh back, who had taken time during her lunch break to make the birthday call. We also talked to her grandparents in Canada, which helped as well. After the phone calls, she decided she d...
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