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Showing posts from October, 2017

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...

Faith's Fourteenth Birthday

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Last year I had a tough time getting used to the idea that my daughter had somehow turned into a teenager. This year, I'm having a hard time believing that my daughter is 14 years old. 14! How in the world did that happen? Admittedly, her birthday started a little rough with Faith waking up saying she didn't want to celebrate. I chalked it up to her being really tired due to her long day on Tuesday which had begun at 7:30 a.m. If you know Faith, you know that is really early for her. Somehow in the midst of her crankiness, we managed to get her up and into her chair for her first feeding of the day without the occurrence of any major battles. When Faith heard her auntie Joh singing Happy Birthday to her while leaving a message, her mood shifted to being happy and joyful. We called Joh back, who had taken time during her lunch break to make the birthday call. We also talked to her grandparents in Canada, which helped as well. After the phone calls, she decided she d...