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Showing posts from November, 2018

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...

Faith's Thankful List 2018

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In the past when Faith and I have done her annual Thankful List, I would write down the items as she told them to me. This year, I thought it would be fun for Faith to be sitting right next to me so I could show her how to do a blog post. So here we are again giving thanks to the Lord for His abundant blessings, which is the whole point of Thanksgiving!  One reason I like this tradition so well is because since Faith has a feeding tube, it's hard for her to get excited about turkey and all the other food that accompanies this special day. This year, Faith says she is especially THANKFUL for the following people and things in her life: Good Friends  Faith has made some wonderful friends at a faith-based homeschooling group she attends once a week called Inspire.  This year, she invited the girls from her class to the park for her birthday. (It was near miraculous that we had a 60-degree day with no wind at the end of October!) She had such a wonderful time. As her...