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Showing posts from February, 2019

Faith's Adaptive Skiing Adventure

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I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...
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CHD Awareness Week: My Heart Story (So Far)

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In February 1974 when my mom took me home from the hospital, she thought she had a perfectly healthy baby. But when her mom came for a visit five weeks later to see her granddaughter, she asked why my lips looked discolored. Grandma Dorothy also noticed I slept a lot, even for a newborn. Mom assured Grandma she would ask the doctor about it during my six-week checkup. Mom took me to the same clinic in Wolf Point, Montana, where I had been born. She and Dad were living in a tiny town called Lustre, where Dad worked as a ranch hand. My regular pediatrician was unavailable. Instead, a young doctor, fresh out of medical school examined me.  Dr. Mattley quickly agreed the bluish tint to my lips was disconcerting and because of it, dubbed me a "blue baby." He told Mom that my body wasn't getting enough oxygen, which is why I was cyanotic.  He also detected a heart murmur. An X-ray confirmed a possible heart defect. Following the exam, Dr. Mattley called a clinic in Great Falls,...
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