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Showing posts from October, 2023

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Faith Is No Longer a Teenager

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Last week on the 25th, Faith celebrated her 20th birthday, which means she is no longer a teenager! That morning as we drove to her day program, she asked, "Mom how did I get to be 20 so fast?" In some ways, the time has crawled by, but in other ways, it has gone so incredibly fast.  Faith turns 20!  When it came to planning something for her birthday, she told me she didn't want a party. I knew though, that as soon as I didn't plan one, she would change her mind. And that's exactly what happened! A few days before her birthday she was asking me who is coming to her party. I was like, "What party?"  I had decided to just have a small gathering at our apartment. I'm glad I didn't opt for a bigger one at a larger venue, mainly because of the weather. Up until last Wednesday, we had been having the most beautiful fall ever. The colorful leaves were still on the trees and the grass was still green. We had gone to the pumpkin patch on October 19th and...
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Quick Trip with the Parents to Pembina Gorge

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When my dad told me he'd like to see Pembina Gorge sometime, I told him I had never heard of it. (I don't feel bad as I know many other North Dakotans who hadn't heard of it either!) In order to help make his dream a reality, I tried to schedule a weekend that my caregivers could come here to look after Faith.  We settled on the first weekend in October. My mom decided to come as well. She said it would be the only nonmedical trip the three of us had taken together! We all hoped the fall foliage would be out in full force that weekend!  In preparing to go, I had typed up 3 pages of instructions for Faith's caregivers, one of whom was a loyal respite care provider who has been with us for over 3 years and also my sister.  Both of them are very experienced and resourceful, but I printed out the instructions, nonetheless. Faith has been trying a new kind of food so that was a bit of an adjustment for them.  After dropping Faith off at her day program in the middle of a ...
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