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Showing posts from May, 2024

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...

A Marvelous Mother's Day Weekend

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Previously, I wrote about how we have had some challenges this year with Faith's health. Those challenges persisted as she came down with influenza B, which turned into RSV. As a result, she missed two wheelchair dance practices and the performance.  She felt very sad, but I was proud of her for how well she handled her disappointment. She had fun watching the video of her friends in the performance and said she was "imagining herself being a part of the it!" Along with missing that, she missed two weeks of therapy and one week of her day program.  At the Belle Mehus for "Snow White" (photo by Millie Hyatt)  Last week, she finally got back to somewhat of a normal schedule, going to therapy and half-days at her day program. Thankfully, she had fully recovered so she didn't have to miss "Snow White," the spring performance put on by Northern Plains Dance .  She's always so happy to attend these shows, not just for the entertainment factor, but to...