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Showing posts from May, 2025

It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Faith's Monumental Visit to South Dakota

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When I received my niece, Sydnee's graduation announcement in the mail, I thought it might be the perfect opportunity to visit my brother and his family for the first time at their home in Spearfish. I also thought it would be the perfect opportunity to see Mount Rushmore, which I had never seen before!  My nephew in Nebraska was graduating that same weekend, and my sister Dawn and I tried to put together a plan where we could go to both of their graduation receptions. I knew though, that Faith would feel left out and would want to go, too. I also knew it was going to be difficult to find someone to look after Faith over Memorial Day weekend.  Our finalized plan involved Dawn traveling to South Dakota with me and Faith and then her flying to Nebraska by herself. Faith and I would then drive back to Bismarck by ourselves.  3 adventurous travelers  I must admit, as the trip got closer, I started to get a little anxious about how Faith was going to do with so much drivi...
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Faith's Spring Dance Performances

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 Lately, I've been feeling very fortune to live in a community that provides so many activities for those with special needs and disabilities. Last year on her 21st birthday, Faith began taking adaptive dance classes at Northern Plains Dance (NPD). They offer five sessions throughout the year. We opted out of the session offered in January and February, mainly just to avoid being out in the brutal weather winter more than we have to be.  Faith working on some dance skills with ribbons.  During the February/March sessions, her class began practicing for their "big performance," which would take place during the student showcase. All of the dancers at NPD participated in this showcase. Her class would be performing to "Can't Stop the Feeling" by Justin Timberlake.  Faith was excited not only because of the song, but because both of her dance partners would be on stage dancing with her. During the sessions, her partners take turns with her from week to week, ...
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