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Showing posts from October, 2025

Faith's Adaptive Skiing Adventure

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I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...
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Faith's Epic 22nd Birthday Weekend

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 A while back I had asked Faith what she wanted to do for her birthday. A concert? NDSU Bison game? A mini trip somewhere? Nope, nope, and nope. All she wanted for her birthday was to have a party at the church. She then started naming names of people she wanted to invite. And then she just kept inviting people. (And even recruiting people to help decorate). It was going to be a big party!  Birthday cookies!  Her birthday celebration actually began on Friday. Instead of sharing cupcakes this year with her day program peers and staff, she wanted her Auntie Dawn to make monster cookies for everyone. Faith was so excited to stop by Dawn's office on Friday morning to pick up the cookies.  That evening, I took her to adaptive dance at Northern Plains Dance and was surprised to learn she had a different helper for the evening - her good friend, Maddie! They had fun, but I think Faith just wanted to visit with her instead of dance! After getting home, Faith relaxed to watch...
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Appointments and More Appointments

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One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...
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