Faith's Mom's Blog

Today we met with nine members of Faith's IEP team at school this morning. The meeting was at 8:00 a.m. so we had one of our respite care providers come get Faith ready for school and take her there, which all worked out very well. The purpose of Faith's IEP is to set goals for her to work on throughout the school year. The whole team works together to ensure these goals are met. I must admit that probably the hardest part of the meeting was discussing the fact that she is not making any progress with learning words and having the ability to read.  I discussed this in a blog post from this summer after an eye appointment in which the doctor told us she is probably having trouble getting her eyes to track left to right. It is somewhat disheartening, but as the doctor told us we should keep trying and finding new ways to help her eyes "attend" as they called it. One person on Faith's IEP team is a vision specialist who works with the students at school, and sh...

Oh boy! These last two mornings have been tough ones as far as Faith getting ready for school. Everyone seems sort of perplexed by her behavior. She cries and screams and throws a fit as soon as I start getting her dressed for school. She tells me repeatedly to "Stop it!"  I seriously wonder what the neighbors think during all of this. At some point she does calm down but why does she even do it in the first place? Does she seriously think that by throwing a fit we're not going to send her to school? Both her morning and afternoon aides say that when she is in the classroom, she is a little tense, and her arms are bent up and she can't totally relax. I'm hoping this gets better as she acclimates to her new classroom.  It can be a challenge to get out the door in the morning!  Despite her bits of anxiety, her feedings are going well at school for which I am very grateful. Last year we kept having episodes of gagging and throwing up. We decided to take her to a nu...

Well, just as I thought, this morning didn't go too well getting Faith ready for school. She was in tears for most of the time we were getting ready. I tried to sit with her and console her and through her tears she said, "I'm not ready for school." When I asked her why she replied through even more tears, "I want to stay home with you." It was sad and endearing at the same time. I'm not sure what finally brought her out of her tears, but she did calm down as I was fixing her hair. Then when her dad tried to talk to her, she told him she was busy getting ready. Rob and I both walked her to school and since her morning aide was nowhere to be seen, I took her downstairs to her classroom. On the way, we ran into several teachers who gave Faith a very warm welcome back to school. She received many compliments on her outfit and her pretty hair. She was smiling and talking, and I knew at that point she was going to be fine. At home, I kept watching the cl...

Tomorrow is the big day - Faith officially becomes a 2nd grader. We have been spending the last couple of weeks buying school supplies, shopping for school clothes, and having fun driving the van around.  Then yesterday to help her get emotionally ready for school we read the list of kids in her class and had a little pretend school session at home - of course she wanted to be the teacher! She does say that when she grows up, she wants to be a teacher. She definitely has the giving instructions part down! This morning, I agreed to help volunteer at one of the booths for open house so parents could come in and pay lunch money, pay PTO dues, buy spirit wear - things like that. Faith was very patient with me at the booth and it helped when people came over to visit.  After we were done with that, we ventured downstairs to meet her teacher and see her classroom. I was thankful that there was an instant connection between Faith and her new teacher. Faith ended up telling her, "Yo...

Assistive technology helps students succeed in the classroom. There are many types of assistive technology to help students with different special needs. In the photo to the left, assistive technology called interactive switches allow Faith to drive her power chair and operate her computer at school. Read more by going to Assistive Technology Helps Students with Disabilities.