Faith's Mom's Blog

Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction.  Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...

This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   The very first time Faith ever tried aquatic therapy was 2011 when she was 8 years old. When she got into the pool, she cried during the whole session. But in the following weeks, she came to love getting into the warm water. She most likely realized how good it felt to get into the therapy pool, where her tone decreased and she could feel more relaxed. It became the perfect place to do her arm and leg stretches.  Faith enjoying aquatic therapy when she was younger. Aquatic therapy also gave her a chance to get some good exercise and just have fun. It even helped her get used to swimming pools in general. When she traveled, she loved getting into the little kiddie pool. She also liked to go swimming during the summer.  Unfortunately, the aquatic therapy pool eventually closed so she was no longer...

When I received my niece, Sydnee's graduation announcement in the mail, I thought it might be the perfect opportunity to visit my brother and his family for the first time at their home in Spearfish. I also thought it would be the perfect opportunity to see Mount Rushmore, which I had never seen before!  My nephew in Nebraska was graduating that same weekend, and my sister Dawn and I tried to put together a plan where we could go to both of their graduation receptions. I knew though, that Faith would feel left out and would want to go, too. I also knew it was going to be difficult to find someone to look after Faith over Memorial Day weekend.  Our finalized plan involved Dawn traveling to South Dakota with me and Faith and then her flying to Nebraska by herself. Faith and I would then drive back to Bismarck by ourselves.  3 adventurous travelers  I must admit, as the trip got closer, I started to get a little anxious about how Faith was going to do with so much drivi...

 Lately, I've been feeling very fortune to live in a community that provides so many activities for those with special needs and disabilities. Last year on her 21st birthday, Faith began taking adaptive dance classes at Northern Plains Dance (NPD). They offer five sessions throughout the year. We opted out of the session offered in January and February, mainly just to avoid being out in the brutal weather winter more than we have to be.  Faith working on some dance skills with ribbons.  During the February/March sessions, her class began practicing for their "big performance," which would take place during the student showcase. All of the dancers at NPD participated in this showcase. Her class would be performing to "Can't Stop the Feeling" by Justin Timberlake.  Faith was excited not only because of the song, but because both of her dance partners would be on stage dancing with her. During the sessions, her partners take turns with her from week to week, ...

This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time!  Faith receiving food through an NG tube in the NICU.  Grandma giving Faith a bottle when she was 2 months old.  After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...