Faith's Mom's Blog

Faith and I barely made it through Christmas before she got hit hard with the flu bug. (Which is why this blog post is a bit delayed!) Leading up to the night of the 25th, we were enjoying lots of music, goodies, and family time.  One event that has become a tradition for us is going to the Nutcracker ballet. This year's performance marked the 8th one in a row that we have attended! We love everything about the Nutcracker - the music, the costumes, the different scenes, the talented dancers, seeing some of our friends onstage, and the seasonal excitement in the atmosphere! Ready to go to the Nutcracker! Of course, the week after the Nutcracker always proves to be a busy one, as it is one week before Christmas! Faith had her usual therapies and while she was at her day program, I would do all of my running around. During one of the gift shopping excursions, I ran into my brother Todd! We had lots of fun catching up, right there at Fleet Farm!  My little bro and I hanging out at...

Thanksgiving is of course a time to reflect upon the things for which we are thankful. But like I told Faith the other day, I think we both thank God every day for the blessings he has bestowed upon us.  Each night, we read a scripture together (it's usually one Faith has memorized such as Psalm 23 or John 3:16-21). After our scripture, we recite "Let your light shine before others, that they may see your good deeds and glorify your Father in heaven" (Matthew 5:16). At the end of that verse, we add our little cheer, "Do good deeds! Say nice things! Be kind!"  This little cheer is just a way to remind both of us, that's how God wants us to act every day. Then we pray, which often begins by thanking God for all that He has done for us and then we pray for others. But the other night after prayer time, I asked Faith to tell me some things she was really thankful for. I told her what I was thankful for as well.  This year, we are feeling especially thankful for ...

 A while back I had asked Faith what she wanted to do for her birthday. A concert? NDSU Bison game? A mini trip somewhere? Nope, nope, and nope. All she wanted for her birthday was to have a party at the church. She then started naming names of people she wanted to invite. And then she just kept inviting people. (And even recruiting people to help decorate). It was going to be a big party!  Birthday cookies!  Her birthday celebration actually began on Friday. Instead of sharing cupcakes this year with her day program peers and staff, she wanted her Auntie Dawn to make monster cookies for everyone. Faith was so excited to stop by Dawn's office on Friday morning to pick up the cookies.  That evening, I took her to adaptive dance at Northern Plains Dance and was surprised to learn she had a different helper for the evening - her good friend, Maddie! They had fun, but I think Faith just wanted to visit with her instead of dance! After getting home, Faith relaxed to watch...

One of the unfortunate things about cerebral palsy (CP) are the many co-occurring health issues that go along with it. Because of this, those with CP have more doctors, specialists, and other kinds of providers they see on a regular basis. While the CP itself mainly affects the muscles, other areas of the body are affected as well, which results in more medical challenges.  For instance, besides CP, some of other Faith’s health issues include: ·          Gastroesophageal reflux disease (GERD) and other digestive issues ·          Scoliosis ·          Bowel and bladder incontinence ·          General anxiety Because of these co-occurring conditions, we have more appointments than the average person. At times, it can all be a bit overwhelming. Faith enjoying a nice fall day On September 23 rd , we ended up in the E...

September is  NICU Awareness Month . For those who don't know, NICU is an acronym for Neonatal Intensive Care Unit. According to  World Metrics  50,000 premature babies in the United States receive care each year in the NICU.  The average NICU stay for a preemie is 25 days. Honestly, that number surprises me, as I thought it would be much higher than that. Along with preemies, full-term babies born with certain health issues, such as respiratory distress, jaundice, and other kinds of infections receive care in the NICU.  Tiny Faith in her isolette at Mayo  But for Faith, whose untimely birth consisted of an emergency C-section 11 weeks early, it took 73 days before she was discharged. Those 73 days were a major emotional rollercoaster! And for many reasons, one of which was being nearly 600 miles from home as Faith was born at the Mayo Clinic in Rochester, Minnesota. (You can read what led up to that on my post,  October 4, 2003: A Day I'll Ne...