A Not So Fun 4th and Tough Week for Faith

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The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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Too Soon for Winter!

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The weather people have been threatening us for days and now as I write this post, there is white stuff swirling and twirling down from the sky. I guess maybe we North Dakotans should have known that we were going to have an early winter, beings our summer was actually more like fall. But still...it is truly sad to see the green leaves falling off of the trees without even having a chance to turn color first.

It is also truly sad that parents have had to dig out their kids' winter attire, including mittens and boots. I know it can be difficult getting kids all bundled up to go out in the 20-degree weather, as we are having now. But for parents of kids in wheelchairs, it is not just difficult, it is a chore unto itself.

Faith's new chair, while she sits in it so well, is truly a pain when it comes to her winter garb. She has these side lateral things that help her stay in an upright position. You can pop the laterals out which is great for getting her coat on but since she is then almost twice her normal size, the laterals keep popping out and when this happens, she falls sideways.

I'm not sure what's going to happen when she has to start wearing her snowpants. Is she even going to fit in her chair, I wonder.

The first chair she had was called a Kid Kart and we had a special cover for it to protect her from the wind when she is outside. This chair comes with no such thing. So far, I resort to putting a blanket over and around her legs and have her face covered with a sweatshirt of mine, which she doesn't like because she can't see anything. The Kid Kart cover had a special little window so she could still see. I guess we'll need to figure something out.

I think some people think I am a little crazy for walking my child to school in this cold weather but really, by the time I get her to the car, into the car, her chair taken apart, drive down the street, put her chair back together, get her into her chair, strap her into her chair and take her inside, I might as well have just walked her to school in less time.

I do wonder, however, how it will be trying to get her chair through the snow when it actually accumulates on the ground. I tried it last year and her chair just didn't budge in the snow. Hopefully this winter we will not have another 100 inches.

Ah, yes, the dilemmas that winter brings with it. Why couldn't winter hold off for another month or maybe even two?

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A Not So Fun 4th and Tough Week for Faith

-
Image
The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm.  The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
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