Faith's Monumental Visit to South Dakota

Image
When I received my niece, Sydnee's graduation announcement in the mail, I thought it might be the perfect opportunity to visit my brother and his family for the first time at their home in Spearfish. I also thought it would be the perfect opportunity to see Mount Rushmore, which I had never seen before!  My nephew in Nebraska was graduating that same weekend, and my sister Dawn and I tried to put together a plan where we could go to both of their graduation receptions. I knew though, that Faith would feel left out and would want to go, too. I also knew it was going to be difficult to find someone to look after Faith over Memorial Day weekend.  Our finalized plan involved Dawn traveling to South Dakota with me and Faith and then her flying to Nebraska by herself. Faith and I would then drive back to Bismarck by ourselves.  3 adventurous travelers  I must admit, as the trip got closer, I started to get a little anxious about how Faith was going to do with so much drivi...

The Waiting Room - Our Little Community

In the waiting room, at pediatric therapy, I am known as Faith's mom. Just as others are known as Ashley's grandma, Luke's grandma, Chloe's mom, Abby's caretaker. At first, we were just a familiar face to one another. But as our children and grandchildren came for therapy more and more, we began to talk. We compared stories. We asked each other questions. Our waiting time has now become social hour. We have become our own little community - supporting one another, offering prayers and talking to those who know exactly what we go through.

It's not just the parents, grandparents and caretakers who share a special connection with one another. It's also the three receptionists who sit behind the desks. Some children, like Faith, have been going to therapy for years. They know our backgrounds and they know when we aren't feeling well. Most of all, they know and understand our children. They laugh at the children's stories, and they cry too when one of the young patients is in the backroom getting Botox injections.

We can tell when there is a visitor amongst us. First-time families whose children need physical, occupational or speech therapy. They tend to look a little longer at a child in a wheelchair, puzzle over what is going on during an enteral feeding, wonder why some children make silly noises in order to communicate. The rest of us look and smile, trying to make them feel welcome. We understand their worries, their fears, their anxiousness.

Faith taste-testing some cupcake frosting. 

For some of those in our little community, mere socialization turns into friendship. We call one another, send each other Christmas cards, give new babies in the family gifts and set up play dates for the kids. And sometimes we even pass out treats, like Happy Birthday Jesus cupcakes during the holiday season. We are our own little community, and it helps us get through the life of having a special needs child a little easier and a little less overwhelming.

Comments

Most Popular Posts

Guest Post: Who Needs Sympathy?

Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far

Faith's Monumental Visit to South Dakota

Our Review of Wheel of Fortune: The New Era