A Topsy-Turvy Month of March

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Topsy-turvy...that's the only word I can think of to describe the month of March. It's been disorderly, chaotic, and a bit out of joint. There have been ups and downs. Highs and lows.  It all started out well enough. My dad celebrated his 75th birthday. This was an especially big deal as he gave us all a scare last month when he came down with a staph infection, which entered his bloodstream. He was very sick and his doctor said if he would have waited 1 more day before going to the ER, the outcome might have been different.  Celebrating my dad's 75th birthday!  On his birthday, we just had a small party as he was not yet feeling 100 percent. A couple of weeks later, when Dawn was here with Faith and I stayed with my parents, I noticed he seemed like he had more energy and was feeling better. I am very thankful for that!  Another person in my family (my sister Tesa) also had a milestone birthday this month. She turned 50! We were all hoping it would work out to have ...

The Waiting Room - Our Little Community

In the waiting room, at pediatric therapy, I am known as Faith's mom. Just as others are known as Ashley's grandma, Luke's grandma, Chloe's mom, Abby's caretaker. At first, we were just a familiar face to one another. But as our children and grandchildren came for therapy more and more, we began to talk. We compared stories. We asked each other questions. Our waiting time has now become social hour. We have become our own little community - supporting one another, offering prayers and talking to those who know exactly what we go through.

It's not just the parents, grandparents and caretakers who share a special connection with one another. It's also the three receptionists who sit behind the desks. Some children, like Faith, have been going to therapy for years. They know our backgrounds and they know when we aren't feeling well. Most of all, they know and understand our children. They laugh at the children's stories, and they cry too when one of the young patients is in the backroom getting Botox injections.

We can tell when there is a visitor amongst us. First-time families whose children need physical, occupational or speech therapy. They tend to look a little longer at a child in a wheelchair, puzzle over what is going on during an enteral feeding, wonder why some children make silly noises in order to communicate. The rest of us look and smile, trying to make them feel welcome. We understand their worries, their fears, their anxiousness.

Faith taste-testing some cupcake frosting. 

For some of those in our little community, mere socialization turns into friendship. We call one another, send each other Christmas cards, give new babies in the family gifts and set up play dates for the kids. And sometimes we even pass out treats, like Happy Birthday Jesus cupcakes during the holiday season. We are our own little community, and it helps us get through the life of having a special needs child a little easier and a little less overwhelming.

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