Faith's Blended Diet and Other Things that Help with Her Digestion

Image
This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time!  Faith receiving food through an NG tube in the NICU.  Grandma giving Faith a bottle when she was 2 months old.  After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...

Sing Along with Faith

One of my favorite sounds in the whole world is to hear Faith sing. She has such a sweet little voice and to hear her sing always brings a smile to my face. I really get a kick out of her singing when she's driving her power chair down the hallway. As I slowly walk behind her, she belts out, "1,2 buckle my shoe, 3,4 four shut the door..." She reminds me of me singing along to the radio while driving my car. But for her - she doesn't need a radio!

When we are in the car together, I have K-LOVE playing on the radio and she always asks, "what's this song called?" She listens to the song then the next one will come on and she'll ask the same question. Sometimes I don't know the answer and I'll tell her, "I don't know what this one is called." Then she'll say, "It's about Jesus."

There are some Christian songs she knows the words to and when she sings along to those, I am so proud of her for listening so well to the words and then being able to repeat them. She especially likes to sing "Mighty to Save," "Open the Eyes of My Heart" and "He Reigns." Other times she just likes to listen, and she'll say, "Praise the Lord, mommy" and we'll lift up our hands together and wave them in the air.


Just the other day we were sitting on the couch together and I asked her to sing me some songs. She sang "Hey diddle diddle", "This old man", and the "Itsy Bitsy Spider." And while singing she added her own words like, "Yeah" and "come on everybody!" 

Then she told me she was going to sing the "Itsy Bitsy Spider" in Spanish. WOW! I briefly wondered if they had learned that at school. Then she began to sing, "The itsy-bitsy spider went up the waterspout, uno. Down came the rain and washed the spider out, dos. Out came the sun and dried up all the rain. Tres. So, the itsy-bitsy spider came up the spout again. Ocho." Oh well, so it wasn't in Spanish but at least she tried to throw some Spanish in there and she did come up with it all on her own!

Comments

Most Popular Posts

Guest Post: Who Needs Sympathy?

Our Review of Wheel of Fortune: The New Era

Faith's Blended Diet and Other Things that Help with Her Digestion

Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far