It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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The Great American Bike Race - Just Plain Awesome!

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There are so many words I can think of that describes the Great American Bike Race event that took place this past Saturday: loud, fun, exciting, crazy, inspiring, encouraging, exhausting but most of all it was just plain awesome!

As team captain, I was required to be there all day, which I didn't mind but my feet certainly did as I did not sit down once! I arrived before 9:00 a.m. to greet my first rider of the day, my cousin Beth. She really knew how to set the pace by biking 17 miles in 25 minutes! After Beth, my former co-workers from Laducer showed up. I am so thankful to keep in touch with many of my friends from Laducer. Jane and Brooke did awesome as well - Jane did especially great with fundraising as she raised over $600!

Lindsey and her boyfriend Matt arrived sporting their very cool 'Faith's Fantastic Ten' t-shirts which were paid for by my brother Todd and his oilwell consulting business. They were designed by another rider, Liza Kessel. 

While Matt was riding, Rob and Faith showed up! Faith seemed a little overwhelmed at first (they blast the music really loud) but she settled down and ended up having so much fun! She especially had fun cheering for daddy when he rode and keeping him cool by fanning him with the fan. He did really good and biked 16.6 miles!

Faith with Matt and Lindsey. 

The fun continued as Liza and her husband took their turns on the bike. While they rode, many of Faith's friends came to the bike race to see her. Mrs. Steckler (her teacher) came with her family as well as Mrs. Volk (her instructional aide at school.) A few of her classmates came as well. 

Faith also had fun visiting with those she sees at therapy and also people who have worked with her in the past, like her early interventionist and former speech therapist. Her former respite care provider, Kimberly came all the way from New Town to ride and to see Faith as well.

Some of my former co-workers even peddled on my team! 

Finally, it was time for the last rider of the day - my friend Tina's husband, Doug. Unfortunately, he had a little accident when his foot slipped out of the pedal and the pedal hit his leg (the bike was going nearly 60 miles per hour when that happened.) He was a trooper though. Tina and Doug's kids were there too to visit with Faith and see what the bike race was all about. Also, Tina's parents came so they could meet Faith.

Doug gives it all he has! 

 
Faith and her dad fan the riders to help keep cool. 

Another great moment of the bike race was having Callie's Angels right next to us. The team is made up of family members of a girl named Callie who had cerebral palsy and passed away in 2008 at the age of nineteen. We heard so many comments from them how Faith's beautiful, bright smile reminded them of their Callie. They were so blessed just to be able to talk to Faith and hang out with her.

All in all, it was a fantastic day and as an added bonus I was able to make my personal goal of raising $1,000 for our team. Thanks to all of those who donated, including my family and friends, Mrs. Steckler's kindergarten class, Centennial Elementary and the residents of our building who gave during our bake sale. 

It truly is amazing how so many people come together for this amazing fundraiser. I know firsthand how blessed the North Dakota families of children with cerebral palsy are for having this awesome event.

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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