It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
1 comment

Adaptive Equipment for Children with Cerebral Palsy

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Adaptive Equipment for Children with Cerebral Palsy

Faith in her stander, a common piece of adaptive
equipment for kids with cp

Comments

  1. Danaus ClarusJanuary 23, 2011 at 1:08 PM

    I'm so sorry for the late reply. I've been completely wrapped up in a holiday pause. I just got out of the relaxation period. :)
    I hope that you and Faith and a wonderful Christmas.
    She's absolutely adorable!

    DanausClarus

    ReplyDelete
  2. Cari JeanJanuary 24, 2011 at 2:43 PM

    I've been wondering where you were! Always good to get in some relaxation time!

    ReplyDelete
  3. AnonymousMay 18, 2011 at 7:44 AM

    This looks great I have never seen anything like it before thanks for sharing.


    Pizza Equipment

    ReplyDelete
  4. shujaktkJanuary 14, 2012 at 11:43 AM

    my jasmine have cerebral problem, she is now 4 year but still can not walk, talk, i am so sad for her, because here doctor said, this type problem can not solve ...so i am so sad for jasmine, i wish one day she catch my finger and walk with me, i wish she can call me BABA, i wish to see smile on her face always....i wish only...

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  5. Cari JeanMarch 2, 2012 at 8:26 PM

    Shuja - is there not any therapy programs in your area for Jasmine? They can be extremely helpful - they may not be able to help your child walk or talk but she can still be strengthened in her mind and the abilities that she does have. Also, it is good to put hope in God and trust in Jesus - He is our healer!

    ReplyDelete

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Most Popular Posts

It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Guest Post: Who Needs Sympathy?

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Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
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Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction.  Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
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