A Topsy-Turvy Month of March

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Topsy-turvy...that's the only word I can think of to describe the month of March. It's been disorderly, chaotic, and a bit out of joint. There have been ups and downs. Highs and lows.  It all started out well enough. My dad celebrated his 75th birthday. This was an especially big deal as he gave us all a scare last month when he came down with a staph infection, which entered his bloodstream. He was very sick and his doctor said if he would have waited 1 more day before going to the ER, the outcome might have been different.  Celebrating my dad's 75th birthday!  On his birthday, we just had a small party as he was not yet feeling 100 percent. A couple of weeks later, when Dawn was here with Faith and I stayed with my parents, I noticed he seemed like he had more energy and was feeling better. I am very thankful for that!  Another person in my family (my sister Tesa) also had a milestone birthday this month. She turned 50! We were all hoping it would work out to have ...
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Tuesday Tidbits - Paperwork, Cupcake Sheets and an Upcoming Appointment

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Lately I've been inundated with paperwork so that Faith can continue to receive SSI and Medicaid. Just recently I had to fill out forms to prove to the good  people at Social Security that Faith still has a disability and is still eligible to receive funds.

It was a lot of paperwork considering I had to verify all of her doctor's appointments within the last 12 months and also to prove she had been seeing a physical therapist, occupational therapist and speech therapist. 

Faith went to the SSI office with me on Monday since she didn't have school. The little waiting room was packed but we thankfully didn't have to wait long. When we left Faith yelled out, "Bye guys!" She was pretty happy to get out of there.

Most people who know Faith knows she has a slight obsession with cupcakes. She always wants cupcakes for her birthday and for Christmas we make and give out Happy Birthday Jesus Cupcakes. She has had a pair of pink cupcake pajamas and now has green ones. She even has a stuffed cupcake that was made for her by one of her aides at school. Then her auntie Barbara came over one day and gave her a decoration to hang on her wall - a picture of a cupcake.

I have been thinking for a while how cute it would be for Faith's room to have a cupcake theme. So, imagine my excitement when I actually found pink sheets with cupcakes on them! I found them at Kohl's and not only did I have a $10 off coupon but they were also 60 percent off. They are perfect for Faith's new bed that we got her this past summer. 

Faith seems to like her new cupcake sheets!

This Friday Faith sees her specialist who keeps tabs on how all of her therapy is going and measures her range of motion in her arms and legs. We'll also be getting hip x-rays done so we'll be able to see how her left hip is doing. It is slightly displaced which causes her left leg to be slightly shorter than her right one. 

I'm praying there is no change, but I am expecting a round of upcoming Botox injections. Her leg muscles seem tighter, and I think her not sleeping well lately might be a result of that. I am a bit relieved she'll be seeing her specialist as I am concerned about her hips but as always with this appointment, I am feeling a little anxious as well.

Lots of things going on, I'll be updating about Faith's appointment later this week. Please pray with us that all goes well, and that Faith continues to progress as well as she has been.

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A Topsy-Turvy Month of March

-
Image
Topsy-turvy...that's the only word I can think of to describe the month of March. It's been disorderly, chaotic, and a bit out of joint. There have been ups and downs. Highs and lows.  It all started out well enough. My dad celebrated his 75th birthday. This was an especially big deal as he gave us all a scare last month when he came down with a staph infection, which entered his bloodstream. He was very sick and his doctor said if he would have waited 1 more day before going to the ER, the outcome might have been different.  Celebrating my dad's 75th birthday!  On his birthday, we just had a small party as he was not yet feeling 100 percent. A couple of weeks later, when Dawn was here with Faith and I stayed with my parents, I noticed he seemed like he had more energy and was feeling better. I am very thankful for that!  Another person in my family (my sister Tesa) also had a milestone birthday this month. She turned 50! We were all hoping it would work out to have ...
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I swear we just flipped the calendar to August and now September is right around the corner. How can that be? School has started for some of Faith's cousins and the air is a bit brisk during the morning hours.  Fall is definitely my favorite season, but for Faith, I think she likes Spring better. She loves it when winter is finally over and there are no more threats of snowstorms to ruin her plans! That being said, she is looking forward to some things next month and during the upcoming fall season.  1. Fall Leaves/Fun Flavors One of my favorite parts of transporting Faith back and forth to her therapies and day program is that we get to cross the Missouri River twice a day. We love looking at all the trees by the river, the boats in the water, and even some wildlife like antelope, wild turkeys, and lots of birds.  Along with the pretty leaves, there is a cool crisp feel to the air, and the mosquitoes are long gone. Lots of fun flavors make their comeback in coffee shops ...
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A Plethora of Appointments

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Upon reflecting about the month of July, I have come to the conclusion that Faith has never had more appointments in one month than she did last month. She had over a dozen chiropractic appointments, eight ABM lessons, two visits from the Easter Seals coordinator, one occupational therapy consult, one optometrist appointment (and a partridge in a pear tree!). The Easter Seals visits were merely a formality as Faith has a new case worker and we needed to update some paperwork. Her disability case manager came along on one of the visits. Her optometrist appointment was her annual routine eye exam, and we are glad to report that Faith's eyes continue to remain the same and she still isn't needing glasses. We are thrilled about this as Faith had glasses at one time and we also had to do patching on her eyes, but her vision and her eye muscles continue to function normally! (Praise the Lord!) Faith getting a chance to relax! In June, Rob took Faith to see a chiropractor for ...
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