It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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The Butterfly Ball - Rob and Faith's First Daddy-Daughter Dance

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As Rob was putting on his tie, he asked, "How did I get roped into this again?" He was referring to his and Faith's first ever Daddy-Daughter dance. 

A friend of ours who also has a little girl in a wheelchair has gone for the last four years and has asked Rob in the past if he was going or not. I was so excited when Rob decided to buy tickets for this year's dance called the Butterfly Ball, which is a fundraiser for a local music school.

When we got to the venue, we were a little surprised at how packed it was. Not only were there 299 other dads with their little girls, but there were also moms, grandmas, grandpas, aunts, uncles, cousins, friends, neighbors - all of them taking photos of the dressed-up dads and daughters.

What a handsome husband and beautiful daughter!

Rob and Faith with our friends, Tracy and Paige

Most of the dads were sporting suits and ties and most of the 5–12-year-old girls were dressed in mini prom dresses. I'm not sure where you buy a prom dress in a size 6X - apparently somewhere! Some of them even looked like they had just come from the beauty shop and when we arrived, we saw a limo pulling out of the parking lot.

Neither Rob nor Faith wanted to get in the long line for the Grand March, so instead we found our friends and got a place to sit. I really wanted to stay the whole time, but I also knew this was Rob and Faith's special time together.

I did however stay just long enough for the first dance - Celebrate Good Times, Come On! I thought it was so funny that all the dads were singing along to all the words. Later, I asked Rob what kind of music they played throughout the night, and he said mostly music for the dads. 

I said, "What, no Justin Bieber for the girls?" Rob also said that the few times they played a Michael Jackson song, Faith would ask, "Can we go home now?" (I guess she doesn't share my love of 80s music!) 

Dads and daughters having a ball!

Although Rob and Faith didn't stay for the whole event, we are all glad they went, and I was very proud of Rob for taking his little girl to the Butterfly Ball. And I was proud of both of them for actually getting out on the dance floor! I know it was a very special time that they will never forget.

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It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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