Feeling Thankful for These 10 Things!

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Thanksgiving is of course a time to reflect upon the things for which we are thankful. But like I told Faith the other day, I think we both thank God every day for the blessings he has bestowed upon us.  Each night, we read a scripture together (it's usually one Faith has memorized such as Psalm 23 or John 3:16-21). After our scripture, we recite "Let your light shine before others, that they may see your good deeds and glorify your Father in heaven" (Matthew 5:16). At the end of that verse, we add our little cheer, "Do good deeds! Say nice things! Be kind!"  This little cheer is just a way to remind both of us, that's how God wants us to act every day. Then we pray, which often begins by thanking God for all that He has done for us and then we pray for others. But the other night after prayer time, I asked Faith to tell me some things she was really thankful for. I told her what I was thankful for as well.  This year, we are feeling especially thankful for ...
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November 30 is Newborn Heart Defect Screening Awareness Day

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November 30 is Newborn Heart Defect Screening Awareness Day. I think it is very important to spread this awareness, especially since congenital heart defects (CHD) are the number one birth defect in babies. CHD affects 8 out of every 1,000 newborns and is responsible for more deaths in the first year of life than any other birth defect. 

A simple screening, which is done via pulse oximetry done within the first 24 hours of the baby's life, could prevent such deaths from happening. One such death was a five-day old baby named Cora. 

I was born with a congenital heart defect (CHD), and nobody knew until I was about five or six months old. My mom began noticing that the simplest act of eating from my bottle completely wore me out. And when my lips and fingernails began to have a bluish tinge to them, she knew something was very wrong. 

Unfortunately, at that time we lived on an Indian reservation in Wolf Point, Montana so there weren't a lot of specialists in the area. The closest one was in Great Falls and that doctor told my parents there was nothing that could be done. Thankfully, my parents took me to a pediatric cardiologist in Bismarck who confirmed I had a heart defect and that I needed surgery.

Things are so much different than they were in the 1970s. At the time, there was hardly any available information regarding congenital heart defects and the technology was not there to detect such defects. Times have changed and since these screenings are now available, I strongly suggest that if you have a newborn or are going to have a baby get him or her screened for a heart defect.

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Faith's Epic 22nd Birthday Weekend

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 A while back I had asked Faith what she wanted to do for her birthday. A concert? NDSU Bison game? A mini trip somewhere? Nope, nope, and nope. All she wanted for her birthday was to have a party at the church. She then started naming names of people she wanted to invite. And then she just kept inviting people. (And even recruiting people to help decorate). It was going to be a big party!  Birthday cookies!  Her birthday celebration actually began on Friday. Instead of sharing cupcakes this year with her day program peers and staff, she wanted her Auntie Dawn to make monster cookies for everyone. Faith was so excited to stop by Dawn's office on Friday morning to pick up the cookies.  That evening, I took her to adaptive dance at Northern Plains Dance and was surprised to learn she had a different helper for the evening - her good friend, Maddie! They had fun, but I think Faith just wanted to visit with her instead of dance! After getting home, Faith relaxed to watch...
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Feeling Thankful for These 10 Things!

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Thanksgiving is of course a time to reflect upon the things for which we are thankful. But like I told Faith the other day, I think we both thank God every day for the blessings he has bestowed upon us.  Each night, we read a scripture together (it's usually one Faith has memorized such as Psalm 23 or John 3:16-21). After our scripture, we recite "Let your light shine before others, that they may see your good deeds and glorify your Father in heaven" (Matthew 5:16). At the end of that verse, we add our little cheer, "Do good deeds! Say nice things! Be kind!"  This little cheer is just a way to remind both of us, that's how God wants us to act every day. Then we pray, which often begins by thanking God for all that He has done for us and then we pray for others. But the other night after prayer time, I asked Faith to tell me some things she was really thankful for. I told her what I was thankful for as well.  This year, we are feeling especially thankful for ...
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