It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Transitioning at Home and at Work

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We have been in our new apartment for about two weeks now and I have also made the transition from working at Coventry to Aetna. In the midst of moving upstairs in our building, I also moved up north to the Aetna building. In both moves, I am happy to find that the advantages far outweigh the disadvantages.

Faith watches her pink tv in our new apartment

On the home front, the main reason we wanted to move to the top floor was because we were hoping it would be quieter. And it is! No more constant noise above our heads at all hours of the day! Although Faith still asks, "How long are we going to be living in this apartment," she is making the adjustment rather well.

If there has been one thing to get used to - it has definitely been that it is a lot warmer on the top floor facing south! I mean, like really warm! The temps have gotten down to about 40 degrees at night and we still haven't turned on our heat. In fact, we had to hook up Faith's portable air conditioner in her room because it was getting to be 85 degrees in there! I don't know how we're going to survive the summer up here, but we'll focus on getting through winter first.

There are advantages to facing south though. We have a much prettier view and can see the Capitol building from our balcony. We can also see Faith's school. Rob likes it because he can keep an eye on the vehicles in the parking lot. Plus, it is much quieter than facing the busy street right next to our building. 

our view from the balcony

I am finding it has also been a nice transition with my workplace moving up north. It takes me five minutes to get to work! I get home a little earlier in the evening so that helps with our supper and Wheel of Fortune-watching routine.

All in all, both the transitions at home and at work have been good for all three of us. It was a little crazy there for a little while with everything happening at the same time. but I'm happy to report things are getting better day by day.

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It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Guest Post: Who Needs Sympathy?

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Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
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