A Not So Fun 4th and Tough Week for Faith

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The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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What Faith is Thankful For

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As a child who has a feeding tube, Faith doesn't really have reason to look forward to a big Thanksgiving dinner. Throw in the fact that she has not been feeling well this past week and woke up yesterday morning crying and gagging on mucous, she didn't have much of a Thanksgiving.

So, for her Thanksgiving celebration, I told her that we could make a list of things she is thankful for, and she was happy doing just that. She also had me help her write little letters to her friends and family saying things like, "Thank you for coming to church" or "Thank you for letting me come visit you."

It was really sweet, and she came up with about 20 people she wanted to write letters for. I think this says a lot - that she is simply thankful for the people in her life.

Thankfully, she feels much better today.

Faith is thankful for:
  • Mommy and Daddy
  • Wheel of Fortune
  • Big hugs and kisses
  • Having a sleepover with her grandma (we haven't actually done this yet, but she is obviously looking forward to it!) 
  • Baby Allie - her doll she's had since she was a baby
  • Yogurt and chocolate
  • Bedtime with Elmo DVD
  • Going to church
  • Watching her PBS shows
  • Her bed with her pink cupcake sheets

I think making her list is going to be the start of a great Thanksgiving tradition! 

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A Not So Fun 4th and Tough Week for Faith

-
Image
The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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