Faith's Adaptive Skiing Adventure

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I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...
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Happy Belated Anniversary to Us!

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We got married on Rosh Hashanah (which is the Jewish New Year). So, because our day wasn't going so well on the 7th of September, which is the day we got married, we decided to celebrate today, which is the date of this year's Rosh Hoshanah.

For this anniversary blog post, I was going to write something elaborate and in-depth about some things I have learned in being married for 15 years (and all that I am continuing to learn). However, every time I tried to construct it in my head, it just wouldn't come together.

I wanted to share some of our highs and lows, some of the great memories and not-so-great ones. I wanted to be an encouragement to other married couples who might be struggling.

Instead, I wrote my husband a letter thanking him for his constant support, encouragement, and patience. I'll spare you all the details, but I also told him that I'm glad in the midst of the many challenges we have faced these past 15 years, we have simply refused to give up on one another.

If I were to give any advice to those who might be newlyweds or who are struggling in their marriage, it would be this: Buy the book, "Love and Respect" by Dr. Emerson Eggerichs. The book centers around one simple truth found in the Bible:

Each man must love his wife as he loves himself, and the wife must respect her husband." Ephesians 5:33 

I wish I had read this book when it came 2004; it may have saved me a lot of heartache. But I also know God sent it my way in His perfect timing. 

I could write so much more, but I think I'll save it for some other time. Maybe someday my husband and I will write a book on everything we've gone through in our marriage. For now, I look forward to all that God has for us in the coming years as we continue to grow and learn and seek His will for our lives. 

I'm looking forward to the next 15 years with this guy!

Edit: Sadly, our marriage did not even make it to the next 15 years. Throughout the time of writing this blog, I usually chose to focus on the positive things in our marriage and on Rob being such a good dad, but there were many challenges that did not make it easy. Although I knew it wasn't God's will for us, we ended up separating in August of 2020 and divorcing in July of 2022. Thankfully, although Rob lives in another state, he is still involved in Faith's life, and for that I am truly grateful. 

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Faith's Adaptive Skiing Adventure

-
Image
I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip.  At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up.  Lots of fresh powder at Huff Hills  As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more.  As the day approached, she was...
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An Unforgettable February!

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February started out as it typically does: very cold! This year, my parents and sister braved the weather to have a small get together for my birthday. Faith thought I needed another party like I had last year, but I told her 51 just wasn't as exciting! She also asked if her Auntie Tesa was going to fly up again.  Faith really does love a good party!  Accurate!  Dawn, Faith, and Me Dad practicing holding his arm for after shoulder surgery The next day, my parents took me to IHOP , which had recently opened here in Bismarck, but I hadn't had a chance to go yet. It did not disappoint. My pancakes, eggs, hashbrowns and coffee were all perfect!  I was glad to have gotten this meal in with my parents as two days later, my dad would be going through shoulder replacement surgery. We were all expecting him to be in and out on the same day, which is exactly what happened a couple of years ago when he had knee replacement surgery.  I, along with my siblings, was shocked t...
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Adults Living with Congenital Heart Defects (CHD)

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We are right in the middle of Congenital Hearts Defect (CHD) Awareness Week, which runs from February 7th through 14th. I am glad to see so many posts on social media to help draw awareness! Many of those posts center around children with CHD, which is good as heart defects are the most common birth defect in the United States. But many people are unaware of how CHD affects adults. Hence, this blog post!  In 2010, there were 1.4 million adults in the United States living with congenital heart defects (CHD). Due to increased survival, this number increases by about 5% every year. These numbers are significant considering that at one time babies born with CHD had virtually no chance of becoming an adult. Thanks to surgical advances and research in pediatric cardiology in the past 50 years, most congenital heart defects have been able to be corrected. Today, babies born with heart defects have a much better outlook than they did 50, or even 15 years ago. February 7-14th is CHD Awar...
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Faith's 4 Year Day Program Anniversary

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This past week marked a huge milestone in Faith's life - she has been at her day program for 4 years! I well remember how excited I felt when I found out that in order to qualify for the program, all she needed was to be 18 and have a high school diploma.  I know that is not the case in some states. And in many cases, parents choose to have their special needs child in school until they are 21 and then after that they can attend a day program. For Faith though, since I homeschooled her, we were both ready for her to move on to her adult life when she turned 18!  Faith at the Science Center with one of her day program staff  After a few meetings with her case manager and day program staff, she was ready for her first day. But was I? She was excited when I dropped her off, but as I drove away from the building, I began to cry. Would she really be okay here? Would staff know what to do if she looked uncomfortable or seemed like she was in pain? Faith is verbal, but she canno...
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