Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day. On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler. On Wednesday, she ...
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Faith the Graduate
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I can't believe I am the mother of a graduate! It seems I have waited a long time for this. At the same time, however, it has come very quickly.
I still very vividly remember the days of walking her to school from our apartment building to Centennial Elementary. She had some wonderful teachers, but when she was in 4th grade, we decided to homeschool her.
There were definitely a lot of positive things about homeschooling. One was that she didn't tire so easily so she could focus more. The other is that she didn't catch everyone's germs, which meant she was sick less often.
Another benefit of homeschooling was that I could give her one-on-one attention. Faith's biggest goal was to learn how to read. It took a long time, and although she can only read simple words and very simple sentences, she exceeded expectations
One major drawback of homeschooling is that she missed being around other kids. It didn't help that she is an only child. When I found out about Inspire Collective, I thought it would be perfect for Faith! Unfortunately, at the time it started Faith had some medical stuff that we needed to resolve. But finally in October 2017, Faith was doing better and we decided to give it a go.
There were two girls, who were sisters, that she automatically clicked with. Those two girls remain her best friends. She made other really good friends as well. Many of these girls have invited Faith to their birthday parties and they have come to hers. I love that her disability was never a barrier to making new friends in this group!
Besides making great friends, she studied history, science, STEM, music, and arts, she has participated in Christmas programs, field trips, and other special courses. We are so thankful to Nicole Elliott, for founding Inspire and also to
Mandi Wilhelm for taking it over. All of the teachers made learning so much fun. Even I learned a lot from them over the
years!
Because Inspire played such a huge role in Faith's homeschooling education, it seemed appropriate to present her diploma there. I must say, that as I gave the presentation, I was overcome with emotion. I felt so grateful that God had provided everything throughout the years to help us in this endeavor.
I was so thankful for my "Inspire family" and their love and support. They truly went out of their way to make the day very special day for Faith. Some of her classmates showered her with cards, special gifts, and even the perfect balloon! I was also thankful my parents could come to the event, even though we all made each other cry! As we rolled out the door when it was all over, she yelled, "Yay!! I did it, I graduated!"
Since Faith is already 18 and has graduated, the next step will be attending a day services program for adults with disabilities. She is excited about this opportunity. However, she is also feeling a bit anxious. She knows I am going to have to leave her there.
Since she was homeschooled, this is going to be new for her. I have never really just dropped her off and left her somewhere. She has had respite care look after her while I'm gone, but that is in here home, where she feels safe and secure. Even when we go to therapy twice a week, I am there with her.
It will definitely be different for both of us. I know, though, that this is the right thing to do and that she will probably end up loving it! I'll most likely be the one having a hard time with it!
I am still going to do a graduation open house for her, but it won't be until spring. Maybe by then, we will be done with the cold, snow, and sickness that seems to be hitting everyone we know. For now, I'm going to process the reality that my daughter is all done with school and that she is taking the next big step in her journey!
Keep scrolling to see pictures each year of school!
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day. On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler. On Wednesday, she ...
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction. Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases. Learn more. Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time! Faith receiving food through an NG tube in the NICU. Grandma giving Faith a bottle when she was 2 months old. After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...
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