I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip. At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up. Lots of fresh powder at Huff Hills As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more. As the day approached, she was...
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One Year Ago: My Trip to Mayo
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Today I thought it was quite fitting that on my one-year anniversary of my new pacemaker, I was wearing a 24-hour Holter monitor! It's not because I'm having any issues with my pacemaker. Instead, I'm just preparing for my upcoming cardiology appointment next month.
Thankfully, my cardiologist from the Mayo Clinic in Rochester, MN comes here to Bismarck, so I don't have to make the 1,000-mile round trip again! By the way, isn't amazing how small these Holter monitors are nowadays? I remember having to wear much larger ones that could not be hidden very easily, plus it was hard to sleep being attached to a big clunky machine. Last night, I hardly even knew this little one was there!
I got my original pacemaker in August of 1999 but because the lead was getting old, my cardiology team wanted me to get a new one. It was last year on this day that I was recovering from the procedure. It still bends my mind how God took care of every single detail and that I had found enough people to look after Faith for the five days (and four nights) that I was gone.
I am still incredibly grateful for all those who stepped up to look
after her. I'm also thankful my sister was able to take me to Rochester. Faith
still talks about it like it just recently happened. She often mentions
that her aunt and little cousin stayed with her a couple of nights and
how patient she had to be.
She also talks about how our friend Mandi looked after her, and she even had her kids and husband come over to visit.
I don't know what I would have done without her as she came every
morning to relieve the overnight staff and get Faith out of bed. She
even sent me a picture of Faith every day!
Faith had loads of fun while I was gone!
Faith told me when Grandma and Grandpa were here, Grandpa did his
crossword puzzle and then took a nap. (I think it's cute which details stick in her mind!) There was also the respite care
staff who stayed over a couple of nights and also a few other friends
who helped out. She will truly never forget it. Most of all though, I
think she is proud of herself for getting through that time and being so
mature. It helped that I got to talk to Faith every day and even did a
couple of video chats with her, which she loved.
Even though
it was for a medical procedure, my sister and I made the best of it and
had plenty of laughs along the way. Especially when on the way home our
sister was heading back from a work trip and we managed to catch up to her on
the Interstate, which you can see in the video below!
The double rainbow we spotted just as we crossed into Minnesota
After driving in the dark (and rain) through the Cities, we were thankful to reach our comfy hotel room.
Our hotel was conveniently located just across the street from where I would be having my procedure. This is also where I had my last open-heart surgery in 1999 and my original pacemaker implantation.
Taking the shuttle from our hotel to the downtown campus for a day of medical tests.
Hanging around waiting for the last appointment of the day.
My sister even was able to get some work done!
After a long day, we were able to eat at our favorite restaurant in Rochester!
Me after my procedure...I was just a tad groggy!
Grateful that things went so well!
After a night in the hospital and an extra day recovering, we were ready to hit the road again!
Who is that ahead of us on the Interstate? Let's find out!
Tired but happy sisters reunited in Bismarck!
Grandma is there too, and Faith is super excited to have us all there!
Hopefully it will be a while before I need to go to Mayo again for a medical procedure. If I do though, I know God will provide and Faith will be well looked after!
I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip. At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up. Lots of fresh powder at Huff Hills As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more. As the day approached, she was...
February started out as it typically does: very cold! This year, my parents and sister braved the weather to have a small get together for my birthday. Faith thought I needed another party like I had last year, but I told her 51 just wasn't as exciting! She also asked if her Auntie Tesa was going to fly up again. Faith really does love a good party! Accurate! Dawn, Faith, and Me Dad practicing holding his arm for after shoulder surgery The next day, my parents took me to IHOP , which had recently opened here in Bismarck, but I hadn't had a chance to go yet. It did not disappoint. My pancakes, eggs, hashbrowns and coffee were all perfect! I was glad to have gotten this meal in with my parents as two days later, my dad would be going through shoulder replacement surgery. We were all expecting him to be in and out on the same day, which is exactly what happened a couple of years ago when he had knee replacement surgery. I, along with my siblings, was shocked t...
We are right in the middle of Congenital Hearts Defect (CHD) Awareness Week, which runs from February 7th through 14th. I am glad to see so many posts on social media to help draw awareness! Many of those posts center around children with CHD, which is good as heart defects are the most common birth defect in the United States. But many people are unaware of how CHD affects adults. Hence, this blog post! In 2010, there were 1.4 million adults in the United States living with congenital heart defects (CHD). Due to increased survival, this number increases by about 5% every year. These numbers are significant considering that at one time babies born with CHD had virtually no chance of becoming an adult. Thanks to surgical advances and research in pediatric cardiology in the past 50 years, most congenital heart defects have been able to be corrected. Today, babies born with heart defects have a much better outlook than they did 50, or even 15 years ago. February 7-14th is CHD Awar...
This past week marked a huge milestone in Faith's life - she has been at her day program for 4 years! I well remember how excited I felt when I found out that in order to qualify for the program, all she needed was to be 18 and have a high school diploma. I know that is not the case in some states. And in many cases, parents choose to have their special needs child in school until they are 21 and then after that they can attend a day program. For Faith though, since I homeschooled her, we were both ready for her to move on to her adult life when she turned 18! Faith at the Science Center with one of her day program staff After a few meetings with her case manager and day program staff, she was ready for her first day. But was I? She was excited when I dropped her off, but as I drove away from the building, I began to cry. Would she really be okay here? Would staff know what to do if she looked uncomfortable or seemed like she was in pain? Faith is verbal, but she canno...
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