The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!" Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float. Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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One Year Ago: My Trip to Mayo
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Today I thought it was quite fitting that on my one-year anniversary of my new pacemaker, I was wearing a 24-hour Holter monitor! It's not because I'm having any issues with my pacemaker. Instead, I'm just preparing for my upcoming cardiology appointment next month.
Thankfully, my cardiologist from the Mayo Clinic in Rochester, MN comes here to Bismarck, so I don't have to make the 1,000-mile round trip again! By the way, isn't amazing how small these Holter monitors are nowadays? I remember having to wear much larger ones that could not be hidden very easily, plus it was hard to sleep being attached to a big clunky machine. Last night, I hardly even knew this little one was there!
I got my original pacemaker in August of 1999 but because the lead was getting old, my cardiology team wanted me to get a new one. It was last year on this day that I was recovering from the procedure. It still bends my mind how God took care of every single detail and that I had found enough people to look after Faith for the five days (and four nights) that I was gone.
I am still incredibly grateful for all those who stepped up to look
after her. I'm also thankful my sister was able to take me to Rochester. Faith
still talks about it like it just recently happened. She often mentions
that her aunt and little cousin stayed with her a couple of nights and
how patient she had to be.
She also talks about how our friend Mandi looked after her, and she even had her kids and husband come over to visit.
I don't know what I would have done without her as she came every
morning to relieve the overnight staff and get Faith out of bed. She
even sent me a picture of Faith every day!
Faith had loads of fun while I was gone!
Faith told me when Grandma and Grandpa were here, Grandpa did his
crossword puzzle and then took a nap. (I think it's cute which details stick in her mind!) There was also the respite care
staff who stayed over a couple of nights and also a few other friends
who helped out. She will truly never forget it. Most of all though, I
think she is proud of herself for getting through that time and being so
mature. It helped that I got to talk to Faith every day and even did a
couple of video chats with her, which she loved.
Even though
it was for a medical procedure, my sister and I made the best of it and
had plenty of laughs along the way. Especially when on the way home our
sister was heading back from a work trip and we managed to catch up to her on
the Interstate, which you can see in the video below!
The double rainbow we spotted just as we crossed into Minnesota
After driving in the dark (and rain) through the Cities, we were thankful to reach our comfy hotel room.
Our hotel was conveniently located just across the street from where I would be having my procedure. This is also where I had my last open-heart surgery in 1999 and my original pacemaker implantation.
Taking the shuttle from our hotel to the downtown campus for a day of medical tests.
Hanging around waiting for the last appointment of the day.
My sister even was able to get some work done!
After a long day, we were able to eat at our favorite restaurant in Rochester!
Me after my procedure...I was just a tad groggy!
Grateful that things went so well!
After a night in the hospital and an extra day recovering, we were ready to hit the road again!
Who is that ahead of us on the Interstate? Let's find out!
Tired but happy sisters reunited in Bismarck!
Grandma is there too, and Faith is super excited to have us all there!
Hopefully it will be a while before I need to go to Mayo again for a medical procedure. If I do though, I know God will provide and Faith will be well looked after!
The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!" Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float. Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
I must say, after the long weekend, I am feeling a bit guilty. We didn't have too much going on, so we mainly stayed indoors, and I let Faith watch way too many videos. When Sunday finally rolled around, she was bored and a bit cranky. Before having kids, I always told myself I would not be one of those moms who lets the TV babysit their kids. Things sure turn out differently when you actually have kids! When Faith comes home from school, that is all she feels like doing. She is so tired from her long day, which not only includes classroom time but also working hard with her special education teacher, driving her power chair and any other therapies she might have for the day. By the time she gets home, she is spent. I don' feel as guilty letting her watch so many videos after school but over the Thanksgiving long weekend, I am going to try hard to limit her video-watching time and find other things for us to do. I don't mind Faith playing on her iPad but it's too eas...
Previously, I wrote about how we have had some challenges this year with Faith's health. Those challenges persisted as she came down with influenza B, which turned into RSV. As a result, she missed two wheelchair dance practices and the performance. She felt very sad, but I was proud of her for how well she handled her disappointment. She had fun watching the video of her friends in the performance and said she was "imagining herself being a part of the it!" Along with missing that, she missed two weeks of therapy and one week of her day program. At the Belle Mehus for "Snow White" (photo by Millie Hyatt) Last week, she finally got back to somewhat of a normal schedule, going to therapy and half-days at her day program. Thankfully, she had fully recovered so she didn't have to miss "Snow White," the spring performance put on by Northern Plains Dance . She's always so happy to attend these shows, not just for the entertainment factor, but to...
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