Before getting to my Top 10 Blog Posts of 2025, I want to say how amazed I am that this blog continues to get the views that it does, especially since so many people say that blogging is becoming outdated. (This year alone my blog received over 81,000 views!) Videos and podcasts are all the rage these days, but I have always been a bit old school. One reason I keep up with my blog is that it offers a creative outlet and doing it helps me feel less stressed. It also reminds me that this is one project that I started and have continued. (I love to start new projects but have a hard time keeping them going or finishing them. I will try to work on that this year!) Yet one more reason is because I want to give God glory for all that He has done in my life and use the gift that He has given me to hopefully be a blessing and an encouragement to others. In 2025, here were my most-viewed blogs: 10. Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far Fai...
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Faith's First Wheelchair Dance Performance
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Faith loves going to plays, musicals, ballet performances, and other events in which her friends perform. When she was younger, I thought attending these things would be too overwhelming for her as she has a strong startle reflex. Usually, it's loud or sudden noises that trigger her startle response. However, when the noise is constant, or she knows what to expect, she actually does very well. That's why when I found out that Dreams in Motion was doing wheelchair dance, I figured she would want to do it. When I asked, she enthusiastically said, "YES!"
She was so excited to go to her first practice. She told everyone she saw that she was going to be in a dance performance! During practice, we found out the theme was Encanto (which we have never seen). They were going to be dancing to a medley of songs from the movie. There were about a dozen participants, some with manual wheelchairs and others with powerchairs.
During practice, each of them was paired with a volunteer who helped them dance. Faith even had a little solo part in which she carried a coffee cup to the dance instructor. When her "coach" said, "And that's why coffee's for grownups!" Faith handed the cup to her.
Faith was all smiles during her first dance practice!
The following week, Faith had dress rehearsals in which they received their costumes. Each participant and volunteer wore a little tiny sombrero along with a colorful poncho. They also practiced with the props that were a part of the performance.
It was great seeing everyone having so much fun together. Faith knew a few of the participants from past Dreams and Motion events (such as wheelchair soccer and track and field). She also knew some of them from where she goes to therapy and her day program. A few other moms remarked how comical she was. She certainly does love to make people laugh!
Faith laughing at Coach Lacey.
Faith with her super fun partner, Liz!
Practicing her coffee cup part.
The actual performance was held at Shiloh Christian School and hosted by Just for Kix, which is a dance company in Bismarck. There were 3 performances, and the wheelchair dance group would be participating in 2 of them. The first performance was at 10:00, which meant we needed to be there at 9:30. Thankfully, the school was less than 5 minutes away from where we lived.
We were told that the show would be standing room only, so I was expecting mass chaos upon arrival. Even though we arrived 30 minutes before the show started, the parking lot was already full. I wasn't sure how I was going to get Faith unloaded on my own and then park. (Of course, all the handicap spots were taken!)
I was thinking I could text my parents, who I knew were probably already inside, and ask for their help. Then, I looked and saw a good friend walking through the parking lot with her granddaughter. I honked and asked if she could take Faith inside and wait with her while I parked. Talk about God's perfect timing!
Inside, we found our group and just hung out until it was their turn. There were about 9 or 10 teams before them. Finally, I let Faith's partner take over and went to find a spot to record their performance. They all did so great! Even when one of the props kept falling over, they just rolled with it and didn't let it phase them. Faith wasn't nervous or scared or anything - I was so proud of her and everyone else!
Here they come! Faith didn't even seem phased by the packed gym.
When they finished, I heard a thunderous round of applause and then everyone began to stand! My eyes instantly filled with tears. I really felt like these wheelchair dancers had inspired everyone in the audience, including the other dancers. Afterward, I hurried to the lobby, found Faith and told her that she did it and I was so proud of her! All of the performers were super excited and some of the moms had tears in their eyes, too.
Since we had a few hours before the next performance, I debated on going back home for a bit. I decided against it though as I didn't want to have to deal with parking again. My parents came into the lobby and told Faith what a great job she and everyone else had done. I told them I wasn't prepared for it to be such an emotional experience. Mom said there were even people in the stands crying.
So glad Grandpa and Grandma could make it to the performance!
Me and my dancer!
During the break, Faith ate a bag of animal crackers, and I grabbed a hot dog. We had a nice time just visiting with other parents and their kids. At one point, I took Faith into the bathroom to give her some water through her g-tube. There were some other dancers in there and Faith tried to strike up a conversation with them. She really isn't afraid to talk to anyone!
Out in the lobby, she continued to compliment the other dancers on their hair and costumes. We were sitting right next to the table where people came in and paid and she tried to talk to almost everyone there, too. I told her she really didn't have to talk to everyone! To which she just responded, "Yes I do!" (She gets it from Grandpa!)
Finally, it was time for performance number 2, and they did just as well with another standing ovation. Afterward, the group took some pictures, handed out certificates, and then Faith was ready to head home. It had been an exciting day, and she was ready to just relax! All in all, it was a great experience, and she already can't wait to do it again next year!
It's hard to believe that Faith is 19 years old and has never had a major illness or extended hospital stay since she was in the NICU. The only other time she had to stay in the hospital was when she had her g-tube placed when she was two years old. That is, until now. And to think it all started with her having a simple outpatient procedure that had nothing to do with the reason she was hospitalized. Day 1: Thursday - the Procedure Faith and I got up extremely early as she had to be at the clinic for her outpatient procedure. The procedure was a lumbar puncture in order to do a test dose of medication called baclofen, which would help reduce high muscle tone and spasticity. If the results were good, and it helped her muscles relax, we would have the option (in the future) of inserting a baclofen pump so that she could receive the medication continuously via a catheter in her spine. I stressed the importance of giving her anti-nausea medication before the procedure be...
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
Before getting to my Top 10 Blog Posts of 2025, I want to say how amazed I am that this blog continues to get the views that it does, especially since so many people say that blogging is becoming outdated. (This year alone my blog received over 81,000 views!) Videos and podcasts are all the rage these days, but I have always been a bit old school. One reason I keep up with my blog is that it offers a creative outlet and doing it helps me feel less stressed. It also reminds me that this is one project that I started and have continued. (I love to start new projects but have a hard time keeping them going or finishing them. I will try to work on that this year!) Yet one more reason is because I want to give God glory for all that He has done in my life and use the gift that He has given me to hopefully be a blessing and an encouragement to others. In 2025, here were my most-viewed blogs: 10. Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far Fai...
Faith and I barely made it through Christmas before she got hit hard with the flu bug. (Which is why this blog post is a bit delayed!) Leading up to the night of the 25th, we were enjoying lots of music, goodies, and family time. One event that has become a tradition for us is going to the Nutcracker ballet. This year's performance marked the 8th one in a row that we have attended! We love everything about the Nutcracker - the music, the costumes, the different scenes, the talented dancers, seeing some of our friends onstage, and the seasonal excitement in the atmosphere! Ready to go to the Nutcracker! Of course, the week after the Nutcracker always proves to be a busy one, as it is one week before Christmas! Faith had her usual therapies and while she was at her day program, I would do all of my running around. During one of the gift shopping excursions, I ran into my brother Todd! We had lots of fun catching up, right there at Fleet Farm! My little bro and I hanging out at...
It was so much fun ! Faith did great ❤️
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