The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!" Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float. Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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Faith's First Wheelchair Dance Performance
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Faith loves going to plays, musicals, ballet performances, and other events in which her friends perform. When she was younger, I thought attending these things would be too overwhelming for her as she has a strong startle reflex. Usually, it's loud or sudden noises that trigger her startle response. However, when the noise is constant, or she knows what to expect, she actually does very well. That's why when I found out that Dreams in Motion was doing wheelchair dance, I figured she would want to do it. When I asked, she enthusiastically said, "YES!"
She was so excited to go to her first practice. She told everyone she saw that she was going to be in a dance performance! During practice, we found out the theme was Encanto (which we have never seen). They were going to be dancing to a medley of songs from the movie. There were about a dozen participants, some with manual wheelchairs and others with powerchairs.
During practice, each of them was paired with a volunteer who helped them dance. Faith even had a little solo part in which she carried a coffee cup to the dance instructor. When her "coach" said, "And that's why coffee's for grownups!" Faith handed the cup to her.
Faith was all smiles during her first dance practice!
The following week, Faith had dress rehearsals in which they received their costumes. Each participant and volunteer wore a little tiny sombrero along with a colorful poncho. They also practiced with the props that were a part of the performance.
It was great seeing everyone having so much fun together. Faith knew a few of the participants from past Dreams and Motion events (such as wheelchair soccer and track and field). She also knew some of them from where she goes to therapy and her day program. A few other moms remarked how comical she was. She certainly does love to make people laugh!
Faith laughing at Coach Lacey.
Faith with her super fun partner, Liz!
Practicing her coffee cup part.
The actual performance was held at Shiloh Christian School and hosted by Just for Kix, which is a dance company in Bismarck. There were 3 performances, and the wheelchair dance group would be participating in 2 of them. The first performance was at 10:00, which meant we needed to be there at 9:30. Thankfully, the school was less than 5 minutes away from where we lived.
We were told that the show would be standing room only, so I was expecting mass chaos upon arrival. Even though we arrived 30 minutes before the show started, the parking lot was already full. I wasn't sure how I was going to get Faith unloaded on my own and then park. (Of course, all the handicap spots were taken!)
I was thinking I could text my parents, who I knew were probably already inside, and ask for their help. Then, I looked and saw a good friend walking through the parking lot with her granddaughter. I honked and asked if she could take Faith inside and wait with her while I parked. Talk about God's perfect timing!
Inside, we found our group and just hung out until it was their turn. There were about 9 or 10 teams before them. Finally, I let Faith's partner take over and went to find a spot to record their performance. They all did so great! Even when one of the props kept falling over, they just rolled with it and didn't let it phase them. Faith wasn't nervous or scared or anything - I was so proud of her and everyone else!
Here they come! Faith didn't even seem phased by the packed gym.
When they finished, I heard a thunderous round of applause and then everyone began to stand! My eyes instantly filled with tears. I really felt like these wheelchair dancers had inspired everyone in the audience, including the other dancers. Afterward, I hurried to the lobby, found Faith and told her that she did it and I was so proud of her! All of the performers were super excited and some of the moms had tears in their eyes, too.
Since we had a few hours before the next performance, I debated on going back home for a bit. I decided against it though as I didn't want to have to deal with parking again. My parents came into the lobby and told Faith what a great job she and everyone else had done. I told them I wasn't prepared for it to be such an emotional experience. Mom said there were even people in the stands crying.
So glad Grandpa and Grandma could make it to the performance!
Me and my dancer!
During the break, Faith ate a bag of animal crackers, and I grabbed a hot dog. We had a nice time just visiting with other parents and their kids. At one point, I took Faith into the bathroom to give her some water through her g-tube. There were some other dancers in there and Faith tried to strike up a conversation with them. She really isn't afraid to talk to anyone!
Out in the lobby, she continued to compliment the other dancers on their hair and costumes. We were sitting right next to the table where people came in and paid and she tried to talk to almost everyone there, too. I told her she really didn't have to talk to everyone! To which she just responded, "Yes I do!" (She gets it from Grandpa!)
Finally, it was time for performance number 2, and they did just as well with another standing ovation. Afterward, the group took some pictures, handed out certificates, and then Faith was ready to head home. It had been an exciting day, and she was ready to just relax! All in all, it was a great experience, and she already can't wait to do it again next year!
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!" Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float. Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
I must say, after the long weekend, I am feeling a bit guilty. We didn't have too much going on, so we mainly stayed indoors, and I let Faith watch way too many videos. When Sunday finally rolled around, she was bored and a bit cranky. Before having kids, I always told myself I would not be one of those moms who lets the TV babysit their kids. Things sure turn out differently when you actually have kids! When Faith comes home from school, that is all she feels like doing. She is so tired from her long day, which not only includes classroom time but also working hard with her special education teacher, driving her power chair and any other therapies she might have for the day. By the time she gets home, she is spent. I don' feel as guilty letting her watch so many videos after school but over the Thanksgiving long weekend, I am going to try hard to limit her video-watching time and find other things for us to do. I don't mind Faith playing on her iPad but it's too eas...
If I were to ask people who know Faith what one of her favorite activities is, I am pretty sure they would all say the same thing: socializing. Faith absolutely loves people. She has been a social butterfly ever since she was little. She has always enjoyed going to therapy because she loves meeting new people, even those in the waiting room. Doctor appointments are also great because she gets to meet new nurses. She pretty much makes friends wherever she goes! Faith and friends blowing out birthday candles when she turned 7 During her first years in school, she easily made friends with her classmates. Sadly, though, as the kids got older and since she was limited in her mobility, these friendships faded. When we pulled her out of school altogether in order to homeschool her, the hardest part was not having any friends. Thankfully, we lived in a building that had a community room. Faith and I would often hang out there for a change of scenery. She would sit and wa...
It was so much fun ! Faith did great ❤️
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