It's been a while since I have put up a blog post. I also haven't been very active on Faith's Mom's Facebook page. That's because the month of August was dedicated to moving! About 4 years ago, Faith and I moved from the apartment she grew up in, to a different one in northeast Bismarck. The primary reason for the move was to have underground parking so that getting her loaded into the van by myself during our cold, snowy winters would be less of a challenge. We also needed to find a place in which the elevator didn't break down on a regular basis! One of our last sunsets at our old apartment That place served us well, but the drive to her day program, which is located across the river in Mandan was time consuming, not to mention, expensive. I drove about 45 miles a day and used up a tank of gas a week! Searching for a New Place Before our lease ended, I began praying about finding somewhere else to live. A condo would have been nice, but surprisingly not a...
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A Wonderful Weekend Getaway
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This past weekend, Faith and I
both got to experience the Medora Musicaltogether - for the first time ever!
We went with my dad and sister. The singing and dancing definitely met our
expectations. After the National Anthem, some of the first songs they sang
included, "Let's Hear it for the Boy" and "Dancing on the
Ceiling." Both songs were a great and energetic way to start the show.
Faith was super excited, nearly dancing out of her chair! One reason she could
hardly contain her excitement was that a few of the performers (Adam and
Taylor) go to our church! The storytelling in between the musical numbers
described how the little "cow town" of Medora came to be, as well as
the influence that Theodore Roosevelt had in North Dakota.
View from our seats!
Close up of the performers.
Auntie Dawn and Grandpa
During the song, "Paint Your
Dreams Across the Sky" by Dolly Parton, the cast invited the children to
join them onstage. I wasn't expecting one of the cast members to come up and
stand by Faith to sing. It was super sweet, but unfortunately, I didn't get a
picture. They also sang "His Eye Is on the Sparrow," along with a
medley of gospel songs.
There were country songs and funny songs, too, that got
the crowd laughing and clapping along. One that I remember was "40 Cups of
Coffee." The entertainment also included a trick roping cowboy and another
one yodeling.
We were thoroughly enjoying the
show when I noticed a shift in the weather. It had been bright and sunny upon
arrival, but it had changed to cloudy and windy. Just as they were about to get
into the Paul Bunyan Lumberjack Show, one of the ushers came over to us and
said they were going to call the show in five minutes if we wanted to get ahead
of the crowd to the elevators. I thought it was very kind of him to give us a
heads up, but I was also very disappointed.
Sadly, we didn't get to see much of the lumberjack show.
When we got up to the parking
lot, my sister Dawn pushed Faith as fast as she could to the van and just as
they got there, it began to rain. Just after the four of us piled inside the van,
it began to downpour.
Since we were just sitting there, I got a feeding going
for Faith. After the traffic cleared, we sadly made our way to Dickinson. All
was not lost, though, as there were some gorgeous rainbows in the sky. I have
never seen so many of them in such a short time span!
Bad weather heading straight for us.
The rain was coming down hard!
Videos by Michael Lawlar
Beautiful double rainbow heading from Medora to Dickinson (photo by Dawn Lawlar)
After getting to Dickinson, we
found a place to eat. It was called "Sanford's" and when we pulled
into the parking lot, Dawn and I realized it was the same restaurant we had
eaten at when we had traveled to Watford City about 3 years ago.
Once we were done eating supper,
we made our way back to the hotel and started Faith's evening routine. It had
been quite a day. I was so proud of Faith for how she was handling the
traveling and the disappointment with the musical ending early.
Waiting patiently for her chocolate milkshake!
Being udderly silly!
The next day after checking out,
we set out for our next adventure: a visit to the Dickinson Museum Center where they had the Badlands Dinosaur
Museum. Faith loves dinosaurs and she couldn't wait to get a new shirt for
T-Rex Thursday at her day program.
It was fun to look at the bones and try to
imagine what it was like when dinosaurs roamed the earth. There were also
numerous displays of minerals from all over the world, some of which were
fluorescent.
We also explored the Joachim
Regional History Museum and Dad even asked if they could open up the Pioneer
Machinery Hall, which they sometimes don't do on Sundays depending on how busy
it is. Faith was a little bored with some of the history stuff, so she and Dawn
ventured to the gift shop where she helped her auntie pick out stuffed dinosaur
toys for her grandkids. After all that, we hit up the A&W/KFC and made our
way back to Bismarck.
Dinosaurs and fossils galore!
Faith didn't look too scared!
Faith checking out the cool fluorescent fossils.
I told Faith this is how Laura from Little House travelled.
Grandpa was super impressed with this old tractor.
Getting Faith to the Medora
Musical was something I have been wanting to do for a long time and with the
improved accessibility at the venue, along with help from my sister, we were
able to make it happen! I was also very thankful that Faith's grandpa could
accompany us. I was so happy to be driving to western North Dakota, as that
will always be home to me.
The end of July was a great time to head west as
golden round bales dotted the landscape and the corn, sunflower, and wheat
crops were flourishing. The Badlands looked so beautiful, and we even passed by
a large herd of bison. It truly was a wonderful weekend getaway!
It's been a while since I have put up a blog post. I also haven't been very active on Faith's Mom's Facebook page. That's because the month of August was dedicated to moving! About 4 years ago, Faith and I moved from the apartment she grew up in, to a different one in northeast Bismarck. The primary reason for the move was to have underground parking so that getting her loaded into the van by myself during our cold, snowy winters would be less of a challenge. We also needed to find a place in which the elevator didn't break down on a regular basis! One of our last sunsets at our old apartment That place served us well, but the drive to her day program, which is located across the river in Mandan was time consuming, not to mention, expensive. I drove about 45 miles a day and used up a tank of gas a week! Searching for a New Place Before our lease ended, I began praying about finding somewhere else to live. A condo would have been nice, but surprisingly not a...
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
Normally, Faith is the one with all of the appointments but this week it has been my turn. On Monday I had my annual echocardiogram. On Tuesday I had my pacemaker device check and appointment with the cardiologist who comes to Bismarck from the Mayo Clinic in Rochester, MN. The doctors who come are pediatric cardiologists who also specialize in adults with congenital heart defects (CHD). This saves anyone in the area who has a CHD from having to travel to Rochester each year. It is very convenient! (I do travel to Rochester to get my pacemaker changed, though!) The Bible verse that has kept me going all these years! When I saw the doctor, we mainly discussed two things: my Fontan and my pacemaker. But first, a little background. I was born with double outlet right ventricle (DORV). Basically, this means both my aorta and pulmonary artery stem from my right ventricle. Because of this, my left ventricle does not really do anything, which is why this CHD is referred to as a sin...
There's a blog I read called Caleigh's Corner about a little girl with CP. Her symptoms are similar to Faith's except that Caleigh is nonverbal. One of the posts discussed Caleigh having her own iPad along with a special language app to enable her to "talk." I saw the photos of Caleigh with her iPad and thought how awesome that would be for Faith to have her own. Then, a couple of months ago, during a visit with friends, Faith discovered the Apple iPad for herself. I saw her with an app called Pocket Pond and how she could press the screen to make a splashing noise and the water ripple. She loved it! She also checked out a piano app where there are the actual keys of the piano. After she was done looking at it, she looked at me and said in the sweetest voice, "mommy, can we please take that little screen home with us?" I discussed the prospect of Faith having her own iPad with her speech and physical therapists and they both agreed it would a gre...
You just took us on the trip. Wonderful!
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