Faith began planning her 23rd birthday party about 3 months ago! Everyone sort of laughed at that time and tried to tell her she had a ways to go before her birthday. Now, just like that, it's over! Faith's cake and some of the decorations She really enjoyed the surprise birthday party we threw for a friend of ours last year at Pizza Ranch, so she decided that's where she wanted her party. When I asked her what she wanted for a theme, she totally surprised me by saying, "Bon Jovi!" (We listen to a lot of Bon Jovi in the van!) I was all onboard with her Pizza Ranch plan, because that would make things pretty easy for me. I wouldn't have to worry about feeding everyone. The only drawback was that we could only get a room that accommodated about 25 people, so this year, we weren't able to invite the whole church and many others. (Faith has a lot of friends!) The birthday girl! On the other hand, it worked well to have somewhat of a smaller party as she h...
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Faith's First Concert Experience
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Earlier this year I decided it would be fun to do something extra special for Faith's 21st birthday. Ever since I went to Bon Jovi a couple of years ago with my sisters, Faith has been telling me she wants to attend a concert, too.
When she was younger, I knew she could not have handled all the noise, and that a concert would be way too overstimulating for her. I did, however, take her to a NDSU Bison game a couple of years ago and she handled that like a champ! Because of how well she did with that, I began searching for concerts coming to the area.
The only one that I thought Faith might be remotely interested in was the Zach Williams Revival Nights Tour. The best part was that it was going to be held in Fargo just a few weeks before her birthday! The tour also featured Matt Mahar and CAIN, who both perform songs that we sing in church.
First time ever at Scheels Arena in Fargo!
To make it even more exciting for her, I asked her dad if he could meet us in Fargo for part of her early birthday celebration. As the event grew closer, she became more and more excited. The only thing I was apprehensive about was how long of a day it was going to be for her.
I knew she would still want to go to church, then we would have to leave right afterward to get to Fargo at 3. There, we would check in at the hotel and meet up with her dad.
During church, the guy leading worship knew Faith would be going to her first concert and also knew which artists we were going to see. Because of that, he chose to have us sing a few songs by Matt Mahar, one by CAIN and one by Zach Williams. It was so nice that he did that!
Right after church, Faith and I swung through McDonald's for a quick lunch and then I connected her to the feeding pump so she could have her lunch as well. We only stopped once so that I could disconnect her feeding and get her repositioned in her chair. We got to Fargo shortly after 3 and met her dad in the parking lot. We had a few hours to relax and grab supper before the concert.
The plan was to have Rob drop Faith and I off at the entrance of Scheel's Arena. I wheeled Faith inside and we found someone to help us to our seats. I had never been to that venue before, and honestly, I found it a bit difficult to navigate as there was no signage telling us that we needed to take an elevator to get to the floor seating.
We then had to work our way through a bit of maze just to get to the floor. After finally reaching the floor, I discovered we were on the wrong side, so it took us a while to get across the floor (not to mention get her chair over several power cords). I was trying to hustle as I wanted to get to our seats before they dimmed the lights.
While there was no accessible seating on the floor, they said we could just take a seat away to make room for Faith's chair. Nobody really did this for us, though, so I just sort of parked her in the aisle. This worked well so she could see better and so that she had plenty of room to move around and dance. When she's excited, she kicks her legs and her arms go everywhere!
About five minutes later, Matt Mahar was on stage opening up the show. I was surprised by this, as I thought for sure Ben Fuller would be the opening act. It was great though, because he was the one that we wanted to see the most! He ended with one of our favorites, "Alive and Breathing."
Matt Mahar is first to take the stage!
After he performed, everyone had to turn around to look at the backstage for Ben Fuller. He sang 3 or 4 songs before CAIN took over on the main stage. While Faith had been doing great, I could tell she was running out of steam. I don't think she was quite prepared for how loud it was in there. (I'm not sure how many people were in attendance, but it was packed!)
After CAIN performed her all-time favorite song (Friend in Jesus), she was ready to go. I did love how she belted out the lyrics to that song! (I can't listen to that song without crying, which made it hard to record, so I didn't get video of that one. You can listen to it below, though!)
I wasn't too disappointed that we didn't get to see Zach Williams. My whole agenda was for Faith to enjoy her first concert experience.
CAIN had a really fun stage!
I figured out how to get out of the concert arena and back to the front doors. We called her dad, and it took him less than 5 minutest to come pick us up. (I had purposely picked a hotel that was nearby). As I got her into the van she yelled, "We rocked out!"
Another reason I wasn't disappointed that she wanted to leave early was so that she could get to bed earlier. She was very tired after such a long day.
We came, we laughed, we danced, we sang, we praised Jesus. Now it's time to go home!
The next day, she said her goodbyes to her dad, and we hit the road once again. On the way home I asked if she would ever want to go to another concert again and she said, YES! All in all, I would venture to say her first concert experience was a complete success!
This gift given to me Seven years ago... Not given swaddled in pink and laid close by my side. Instead placed in a see-through box helping to breathe breaths of life. A single touch lasting only seconds not to be seen for several hours. Seven days later, finally in my arms to hold. This gift given to me so undeservedly... Did God really know what He was doing Giving me this treasure for which to care? Thankful. Blessed. These words do not even begin to express what I feel, what I know, what I have. Tough times, yes Challenges, of course. But still joy And love...so much love. Seven years ago This gift, given to me... My heart, my soul forever changed. Happy Birthday, Faith! You are loved!
Faith began planning her 23rd birthday party about 3 months ago! Everyone sort of laughed at that time and tried to tell her she had a ways to go before her birthday. Now, just like that, it's over! Faith's cake and some of the decorations She really enjoyed the surprise birthday party we threw for a friend of ours last year at Pizza Ranch, so she decided that's where she wanted her party. When I asked her what she wanted for a theme, she totally surprised me by saying, "Bon Jovi!" (We listen to a lot of Bon Jovi in the van!) I was all onboard with her Pizza Ranch plan, because that would make things pretty easy for me. I wouldn't have to worry about feeding everyone. The only drawback was that we could only get a room that accommodated about 25 people, so this year, we weren't able to invite the whole church and many others. (Faith has a lot of friends!) The birthday girl! On the other hand, it worked well to have somewhat of a smaller party as she h...
As mentioned in my previous post Faith had to go back to the ER about 6 days following her first stay in the hospital. The reason I took her back was to determine whether or not she was still battling a UTI or if there was something else causing her ongoing fatigue. Thankfully, the ER waiting room was pretty empty, which meant we could go back pretty quickly. After putting in an IV, they drew some labs and also did a chest x-ray and electrocardiogram (ECG) as her heart rate we really high. An empty waiting room at the ER! More Tests They were also going to have to draw another urine sample with a catheter, which was causing Faith to be super anxious. This time, they gave her something to help decrease her anxiety, which made getting the sample much easier. After a while, the x-ray showed a possible pleural effusion. The doctor recommended a CT scan to get a better look. Faith was becoming very anxious again and wanted to sit up in bed, so I ...
Normally, Faith is the one with all of the appointments but this week it has been my turn. On Monday I had my annual echocardiogram. On Tuesday I had my pacemaker device check and appointment with the cardiologist who comes to Bismarck from the Mayo Clinic in Rochester, MN. The doctors who come are pediatric cardiologists who also specialize in adults with congenital heart defects (CHD). This saves anyone in the area who has a CHD from having to travel to Rochester each year. It is very convenient! (I do travel to Rochester to get my pacemaker changed, though!) The Bible verse that has kept me going all these years! When I saw the doctor, we mainly discussed two things: my Fontan and my pacemaker. But first, a little background. I was born with double outlet right ventricle (DORV). Basically, this means both my aorta and pulmonary artery stem from my right ventricle. Because of this, my left ventricle does not really do anything, which is why this CHD is referred to as a sin...
Wonderful!
ReplyDeleteThis is so wonderful! I'm glad Faith had such a good time!
ReplyDelete