It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
1 comment

Faith's Daddy

-
 Due to logistics and other reasons, Rob was not able to witness Faith coming into the world. She was born in Rochester, over 600 miles from home. Rob found out he was a daddy when he stopped in Fergus Falls, Minnesota to make a call to his mother. She told him he was a daddy! He got to Rochester just before midnight on the day of her birth - October 25, 2003.

When Rob first saw Faith's tiny little body - just over 2 lbs., she was covered with tubes and lines all hooked up to different apparatuses. What was supposed to be one of the most joyful events of his life was one of the most frightening. After spending time with a daughter, he couldn't even hold, he came down to the hospital to see me.

I was still pretty out of it, but I do remember coming up with Faith's middle name - Faith Jean Armour. (Faith has both mine and Rob's middle names). We visited her in the NICU as much as we could. She looked so tiny and fragile, but we knew she was a fighter. Finally, one week after she was born, Rob and I got to hold her.

After two weeks in Rochester, Faith was transferred to Bismarck. Rob and I lived at the Ronald McDonald House for the next two months. Faith was discharged from the NICU on her original due date, January 5, 2004. We lived in Watford City at the time and after Faith was diagnosed with CP, we moved to Bismarck so Faith could get the best medical care and pediatric therapy possible.



Since moving, Rob was a stay-at-home dad for four years. He and Faith went through a lot together. In that time, Faith and her dad established an incredible bond with one another. I feel so very blessed that Faith has such a wonderful dad. 

Since she was just a baby, Rob has made it a point to give her three hugs in a row while saying, "Daddy loves you." I don't think he's missed a day. She knows without a doubt how much he loves her. She knows she is safe and protected in his presence. She knows that her daddy prays for her and that some of those prayers have been answered.

Happy Father's Day! 



Comments

  1. Susan FinlayJune 20, 2010 at 3:29 PM

    I remember that day. I was so excited for all of you. When Jean and David came down to my office to tell me, and they said she was tiny. I said that God sent an Angel and she truly is. I will always have a soft spot in my heart for your daughter and I also wish Rob a Happy Father's Day and her Grandad.....Happy Father's Day David.

    ReplyDelete

Post a Comment

Most Popular Posts

It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
Read more

Guest Post: Who Needs Sympathy?

-
Image
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
Read more

Faith's 4th

-
Image
Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction.  Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
Read more

Faith's Blended Diet and Other Things that Help with Her Digestion

-
Image
This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time!  Faith receiving food through an NG tube in the NICU.  Grandma giving Faith a bottle when she was 2 months old.  After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...
Read more