Faith's Blended Diet and Other Things that Help with Her Digestion

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This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases.  Learn more.   Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time!  Faith receiving food through an NG tube in the NICU.  Grandma giving Faith a bottle when she was 2 months old.  After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...
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Lights, Camera, ACTION!

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Yesterday was a big day for Faith - there were a little bit of lights, a few cameras, and a lot of ACTION!

At the beginning of the day about four people met with Faith so that she could FINALLY get the right part installed on her chair. These parts enable her to use the same buttons that she uses to drive her chair to work with her computer. Technology is wonderful but it can require lots of patience!

Faith working on her computer with help from Ms. Hall

That afternoon, the KFYR TV crew came in to record Faith doing some of her daily activities at school. They recorded her doing some work on her computer with her buttons and also driving her power chair.

I haven't seen her drive her chair for a long time and I was very impressed by how well she's driving! She is even able to drive herself into the elevator and turn around because she doesn't like her back to the door. The cameraman got in there with her, and I think he was a little nervous she was going to run him over!

The reporter asked Faith a few questions about GABR and then interviewed Faith's physical therapist at school and also her special education teacher. All three of them did a great job!

Faith being interviewed by KFYR reporter, Julie McDonald

After all that, you would think Faith could have taken a break, but she had to go to the gym to practice with all of the first graders for their upcoming program. I was able to look in on her and see her singing along to the songs!

Seeing her doing all of these activities today reminds me of how far she has come since her first days at preschool. I am so proud of her! I know she will continue to work hard and with the help of others she will be able to overcome her obstacles and meet all of her goals. What more could a parent ask for?

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