A Not So Fun 4th and Tough Week for Faith

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The other day Faith and I were standing in line at the pharmacy, and someone asked her, "How was your 4th of July?" She responded quite honestly, "Terrible!"  Yes, it was definitely not a very fun 4th. In fact, this whole week has been one challenge after another. The only thing we really did for the 4th was go to Art in the Park in Mandan, which was last Friday. Faith found a new tie-dye t-shirt, and I enjoyed a yummy root beer float.  Art in the Park in Mandan on the 3rd I had actually gone with the goal of getting an Indian taco, but it was so humid, I didn't feel like eating anything hot. Because it was so warm, we only stayed for an hour before heading back to Bismarck. That night, I noticed that Faith seemed uncomfortable in her chair, almost like she was having pain. She told me she needed to get out and lie down. I thought maybe being out in the high humidity had been too much for her or that she was having muscle spasms. After she lay down for a bit...
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Summer School

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Daddy got to take Faith to her first day of summer school

Faith was full of questions this morning getting ready for summer school, or Camp Edventure. Many of them she already knew the answer to since we had been talking about it for a while. I think she wanted to be reassured of who her teachers were going to be, who was going to be her aide, when I was coming to get her etc. One of the questions she asked was, "How many days of summer school do I have left?"

She hadn't even begun, and she already wanted to know when it would end! Seriously though, towards the end of the regular school year, she fought in the mornings about going to school. I think she was just getting tired and wanted a much-needed break.

She expends so much energy at school that she is exhausted at the end of the day. A nurse told me recently that kids with CP put out three times more energy than the average child because it takes so much work for some of them just to keep their heads up and try to have some control of their muscles.

I know she has enjoyed her week off from school, but I think once she gets into the routine of going to school for four hours a day, she'll really enjoy that time.

This morning, since Faith starts school at 8 a.m., Rob and I both got to walk her to school. Originally, we had Faith scheduled to take the bus to school, but we figured since there was no snow to worry about anymore, we could just walk her down there and back home. Also, the bus wasn't able to get her until 8:05 and I didn't want her there later than the other kids. I think she's a little disappointed to not take the bus though.

When we got to school, Faith was especially happy when one of her friends came over to her and asked if she could push Faith inside. And when she saw her aide, she yelled out, "Hi Julie!" There was a little bit of confusion with some kids there from other schools not sure where to go. Due to the flood situation, many kids had to attend summer school at a different one than was originally intended for them.

During summer school she'll still be getting speech, occupational therapy, and physical therapy once a week at school along with specialized academics twice a week. She'll also be getting physical therapy and hydrotherapy at the clinic once a week as well.

I'm sure these 27 days of summer school that are left will go by extremely fast!

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