A Topsy-Turvy Month of March

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Topsy-turvy...that's the only word I can think of to describe the month of March. It's been disorderly, chaotic, and a bit out of joint. There have been ups and downs. Highs and lows.  It all started out well enough. My dad celebrated his 75th birthday. This was an especially big deal as he gave us all a scare last month when he came down with a staph infection, which entered his bloodstream. He was very sick and his doctor said if he would have waited 1 more day before going to the ER, the outcome might have been different.  Celebrating my dad's 75th birthday!  On his birthday, we just had a small party as he was not yet feeling 100 percent. A couple of weeks later, when Dawn was here with Faith and I stayed with my parents, I noticed he seemed like he had more energy and was feeling better. I am very thankful for that!  Another person in my family (my sister Tesa) also had a milestone birthday this month. She turned 50! We were all hoping it would work out to have ...
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No Decision Yet Regarding the Baclofen Pump

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Faith recently went to see a surgeon regarding the placement of a baclofen pump. At our last appointment with her specialist who oversees all of her therapy we were shown x-rays that showed her left hip was about 40% out of its socket. For this reason, we set up a consult with a surgeon and were looking at getting the baclofen pump sooner rather than later.

I was surprised to find out that the surgeon has some reservations about inserting the baclofen pump. The main reason for his reluctance is that Faith is still pretty small. They normally won't put the hockey-puck-sized pump in a child that is less than 45 pounds, which is pretty much what Faith weighs. 

There is extra concern with Faith because there is even less room in and around her abdomen due to her mic-key button. When Rob mentioned maybe waiting a year until Faith grew more, the surgeon said that was probably wise.

But still, there is her hip to think about. I really don't think her other doctor is going to be very happy that she's not getting a baclofen pump right now. We could still go ahead with the surgery, but it might cause complications because it would be sort of squished in there and too close to her pelvis bone and be very uncomfortable for her. The pump then might cause more harm than good.


I feel like we are stuck between two doctor's opinions. One is very concerned about her hip, the other more concerned about her size. We are going to have Faith see her pediatrician soon. I was a little surprised she only weighed 45 pounds because at one time she weighed closer to 50. 

Last year we had decreased her feedings because her pediatrician thought she was getting too much Pediasure, which was causing some stomach problems. So now we want to make sure she is getting enough Pediasure during her feedings and want to know what her ideal weight should be. We will also ask him what his opinion is regarding getting the baclofen pump.

In the end, though, it is still our decision. We truly pray for God's wisdom and continue to also pray for supernatural healing for Faith's hip.

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A Topsy-Turvy Month of March

-
Image
Topsy-turvy...that's the only word I can think of to describe the month of March. It's been disorderly, chaotic, and a bit out of joint. There have been ups and downs. Highs and lows.  It all started out well enough. My dad celebrated his 75th birthday. This was an especially big deal as he gave us all a scare last month when he came down with a staph infection, which entered his bloodstream. He was very sick and his doctor said if he would have waited 1 more day before going to the ER, the outcome might have been different.  Celebrating my dad's 75th birthday!  On his birthday, we just had a small party as he was not yet feeling 100 percent. A couple of weeks later, when Dawn was here with Faith and I stayed with my parents, I noticed he seemed like he had more energy and was feeling better. I am very thankful for that!  Another person in my family (my sister Tesa) also had a milestone birthday this month. She turned 50! We were all hoping it would work out to have ...
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