Faith's Monumental Visit to South Dakota

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When I received my niece, Sydnee's graduation announcement in the mail, I thought it might be the perfect opportunity to visit my brother and his family for the first time at their home in Spearfish. I also thought it would be the perfect opportunity to see Mount Rushmore, which I had never seen before!  My nephew in Nebraska was graduating that same weekend, and my sister Dawn and I tried to put together a plan where we could go to both of their graduation receptions. I knew though, that Faith would feel left out and would want to go, too. I also knew it was going to be difficult to find someone to look after Faith over Memorial Day weekend.  Our finalized plan involved Dawn traveling to South Dakota with me and Faith and then her flying to Nebraska by herself. Faith and I would then drive back to Bismarck by ourselves.  3 adventurous travelers  I must admit, as the trip got closer, I started to get a little anxious about how Faith was going to do with so much drivi...
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The Ups and Downs of Faith and Food

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This past week, Faith did something for the first time ever at school - she ate lunch. She tried everything on her tray, which included a turkey sandwich, glazed carrots (which she ate the most of), strawberries and a few bites of a breadstick.

Because Faith still needs help eating solids, her occupational therapist had Faith and a few other girls eat lunch together in a separate room. Faith has made the comment when we feed her that "that's for babies" meaning she knows that this is how babies eat - being spoon-fed by someone else. 

Since we know she is sensitive to this, we decided not to have her join her classroom at lunch for the time-being. But the fact that she actually got to have her lunch replace one of her tube feedings at school was very exciting. The next day she got to eat one of her favorite foods - mashed potatoes and gravy.

Each day the kids at school get a choice between a chef salad, ham or turkey sandwich, and a hot meal. Each of them comes with different side dishes. We knew that one day an enchilada bake would be too much for her, so she opted for the turkey sandwich again.

Faiths loves to bake cookies - and eat them too!

While eating lunch has been a big step forward, it has not come without consequences. Faith became constipated and over the weekend on top of that, she came down with a cold. Yesterday she was not able to keep anything in her tummy and threw up throughout the day.

Now today, we are sort of back to square one with her feedings. This morning, she tolerated about 4 ounces of Pediasure diluted with water which is a good sign. Hopefully we'll be able to get her feedings back on track and then try a few more school lunches this week. 

She may not be able to eat lunch everyday if she gets constipated - for her it's just one more thing that requires the perfect balance. She is on her way though, and as she continues to eat more solids, maybe one day she will eat school lunches every day of the week without any negative consequences!

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