Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day. On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler. On Wednesday, she ...
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Feeling Worn and Weary?
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Have you ever felt this way?
I know I need to lift my eyes up
But I'm too weak
Life just won't let up
And I know that You can give me rest
So I cry out with all that I have left
My prayers are wearing thin
And I'm worn
Even before the day begins
I'm worn
I've lost my will to fight
I bet there are a lot of special needs parents or parents with very young children who can relate to these words. I know I can. Whenever I hear the song, Worn which contains the above lyrics, I am transported back in time when Faith was a little baby.
I was working full time during the day and trying to look after her at night. She did not sleep well, which meant neither Rob nor I sleep well either. To make things even harder, Rob worked overnights on the weekends.
I was in a major state of sleep deprivation. I started drinking caffeine and eating sugar every day at work to help me stay awake. It didn't help that my thyroid was out of whack. Eventually I was diagnosed with clinical depression and put on an antidepressant. It seemed that every day for years I was exhausted, I was completely worn.
Faith's post-NICU days were filled with sleepless nights that lasted throughout her early school years
I tried my hardest to pray during these difficult times but all I could think to pray for was sleep. Thankfully, our family had a lot of prayer support from friends and family. Through the years, Faith continued having trouble sleeping but it has gotten better. There was a light at the end of the tunnel. Currently, I am off my antidepressants and no longer even drink caffeine. God is good!
So, for all of you special needs moms or moms of young children who are struggling just to get through the day, I would like to offer you encouragement and hope. There is a light at the end of the tunnel for you as well. Just don't be afraid or ashamed to ask others to pray for you and keep trusting that He will bring you through this difficult time.
Some Scriptures for the worn and weary:
Come to Me, all you who labor and are heavy laden, and I will give you rest. Take My yoke upon you and learn from Me, for I am gentle and lowly in heart and you will find rest for your souls. For My yoke is easy and My burden is light. Matthew 11:28-30
When you lie down, you will not be afraid; Yes, you will lie down and your sleep will be sweet. Proverbs 3:24
But those who hope in the LORD will renew their strength. They will soar
on wings like eagles; they will run and not grow weary, they will walk
and not be faint. Isaiah 40:31
By the way, this song was written by the lead singer of Tenth Avenue North, Mike Donehey. He and his wife had two young girls and one night as they lay down in bed, his wife reached over and told him how worn out she was feeling. He knew he needed to write a song called "Worn."
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day. On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler. On Wednesday, she ...
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction. Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
This page contains affiliate links and Faith's Mom may earn a commission if you use them. As an Amazon Associate, Faith's Mom earns from qualifying purchases. Learn more. Ever since Faith was born, she has struggled with her digestion. When she was in the NICU, she would spit up after eating even the tiniest amount of formula. Her dad and I were convinced her tummy was too small to handle large volumes of food. Sometimes when she ate, her heart rate would drop really low, which is why she needed to be in the NICU for longer. She just could not get the hang of eating and breathing at the same time! Faith receiving food through an NG tube in the NICU. Grandma giving Faith a bottle when she was 2 months old. After finally bringing her home, eating continued to be an issue as she struggled with severe reflux and constipation. We tried various formulas, but she was never able to drink enough formula to gain a lot of weight. She also had trouble burping, and she...
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That is a great song. Thank you for sharing this:)
ReplyDeleteThank you.
ReplyDeleteThank you for the encouragement Cari. I am especially weary this week, so it was quite timely! Bless you!
ReplyDeleteYour welcome, ladies. Blessings to you and your families - I'll be praying for each of you this week.
ReplyDelete