It's been a while since I have put up a blog post. I also haven't been very active on Faith's Mom's Facebook page. That's because the month of August was dedicated to moving! About 4 years ago, Faith and I moved from the apartment she grew up in, to a different one in northeast Bismarck. The primary reason for the move was to have underground parking so that getting her loaded into the van by myself during our cold, snowy winters would be less of a challenge. We also needed to find a place in which the elevator didn't break down on a regular basis! One of our last sunsets at our old apartment That place served us well, but the drive to her day program, which is located across the river in Mandan was time consuming, not to mention, expensive. I drove about 45 miles a day and used up a tank of gas a week! Searching for a New Place Before our lease ended, I began praying about finding somewhere else to live. A condo would have been nice, but surprisingly not a...
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Faith's Integrative Music Sessions
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This past Sunday at church I noticed Faith singing along to the chorus with a little more gusto than she has in the past. She seemed a little more confident and really projected her voice once she caught on to the words that were being sung.
I must admit, listening to her sweet voice singing the words, "He is faithful, He is glorious, He is Jesus, all my hope is in Him. He is freedom, He is healing right now" was enough to cause tears to stream down my face. Later after thinking about it, I realized that part of her new-found confidence in singing probably has something to do with the integrative music sessions she has been doing with a music therapist.
Faith playing the xylophone
fun with shakers
Every couple of weeks, Jonnica comes into our home and spends about 30 minutes with Faith singing songs and playing instruments. I know how much Faith likes music so I was pretty sure she would enjoy doing this, but an added bonus is that the music therapist also does worship at her church so she and Faith like the same kind of music!
While Jonnica does fun songs with Faith like The Popcorn Song, Ravioli and The Shaker Song, they also sing songs like "This Little Light of Mine" and "He's Got the Whole World in His Hands."
The great part about this music therapy is that while it is super fun for Faith, it also helps her work on things like motor skills, cognition, communication, visual and auditory skills. Besides bringing instruments like shakers, bells and the xylophone for Faith to play, Jonnica also brings flashcards with letters, numbers, words and colors. One of Faith's favorite parts though is getting to play Jonnica's pretty red guitar.
working on more than just music
Of all the cool instruments, this is Faith's favorite!
We've only really begun the integrative music sessions this year, but I am already noticing differences in Faith and how it is helping her. I'm just as excited as Faith is about this type of therapy and who knows maybe she'll be helping to lead worship one day at church!
Click on the video below to hear Faith and Jonnica's good-bye song.
Dear Cari, Faith is just the most beautiful little girl. I have never heard exactly what she has for a handicap is it spina bifida or CP or something else? It is only important to me when I tell others about youtwo it is good to have the facts straight. I can't wait to meet her sometime! Hugs, Betty
Music therapy looks like so much fun! I am in favor of any type of education or therapy that really engages kids, gets them excited, and enriches their lives!
It's been a while since I have put up a blog post. I also haven't been very active on Faith's Mom's Facebook page. That's because the month of August was dedicated to moving! About 4 years ago, Faith and I moved from the apartment she grew up in, to a different one in northeast Bismarck. The primary reason for the move was to have underground parking so that getting her loaded into the van by myself during our cold, snowy winters would be less of a challenge. We also needed to find a place in which the elevator didn't break down on a regular basis! One of our last sunsets at our old apartment That place served us well, but the drive to her day program, which is located across the river in Mandan was time consuming, not to mention, expensive. I drove about 45 miles a day and used up a tank of gas a week! Searching for a New Place Before our lease ended, I began praying about finding somewhere else to live. A condo would have been nice, but surprisingly not a...
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
Normally, Faith is the one with all of the appointments but this week it has been my turn. On Monday I had my annual echocardiogram. On Tuesday I had my pacemaker device check and appointment with the cardiologist who comes to Bismarck from the Mayo Clinic in Rochester, MN. The doctors who come are pediatric cardiologists who also specialize in adults with congenital heart defects (CHD). This saves anyone in the area who has a CHD from having to travel to Rochester each year. It is very convenient! (I do travel to Rochester to get my pacemaker changed, though!) The Bible verse that has kept me going all these years! When I saw the doctor, we mainly discussed two things: my Fontan and my pacemaker. But first, a little background. I was born with double outlet right ventricle (DORV). Basically, this means both my aorta and pulmonary artery stem from my right ventricle. Because of this, my left ventricle does not really do anything, which is why this CHD is referred to as a sin...
There's a blog I read called Caleigh's Corner about a little girl with CP. Her symptoms are similar to Faith's except that Caleigh is nonverbal. One of the posts discussed Caleigh having her own iPad along with a special language app to enable her to "talk." I saw the photos of Caleigh with her iPad and thought how awesome that would be for Faith to have her own. Then, a couple of months ago, during a visit with friends, Faith discovered the Apple iPad for herself. I saw her with an app called Pocket Pond and how she could press the screen to make a splashing noise and the water ripple. She loved it! She also checked out a piano app where there are the actual keys of the piano. After she was done looking at it, she looked at me and said in the sweetest voice, "mommy, can we please take that little screen home with us?" I discussed the prospect of Faith having her own iPad with her speech and physical therapists and they both agreed it would a gre...
Dear Cari,
ReplyDeleteFaith is just the most beautiful little girl. I have never heard exactly what she has for a handicap is it spina bifida or CP or something else? It is only important to me when I tell others about youtwo it is good to have the facts straight. I can't wait to meet her sometime!
Hugs,
Betty
Hi Betty, she was diagnosed with CP at 6 months of age. Blessings to you!
ReplyDeleteMusic therapy looks like so much fun! I am in favor of any type of education or therapy that really engages kids, gets them excited, and enriches their lives!
ReplyDelete