I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip. At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up. Lots of fresh powder at Huff Hills As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more. As the day approached, she was...
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Faith's Thankful List 2015
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To continue with our little Thanksgiving tradition, I asked Faith to list all of the things she is especially thankful for this year. Once again, as I looked over her list, I realized it's mostly the people in her life for which she is the most grateful.
Since she is such a homebody, she especially loves it when people come to our place to visit. However, the three of us did venture to Grandma and Grandpa's for Thanksgiving Dinner where she had a blast!
Here are some of the people she is most thankful for, along with a few other activities she enjoys doing. "My Whole Family" - One time when I spoke at New Life's Redefinition Cafe service, her grandma, grandpa, uncle and aunt showed up. Afterwards she commented, "I can't believe the whole family came to church." So, when she says her whole family, she is talking about her extended family. She especially loves having visits with Grandma and calling Grandmother, Grandfather, and Auntie Joh on the telephone.
Faith with many members of her whole family on Thanksgiving Day
Going to Church - Faith continues to be thankful for New Life's Redefinition service and it is one of the highlights of her week. She is especially grateful that Pastor Marc takes time to pray for her before he races off to the Celebration service (which is held in a different facility). She also enjoys hearing the different speakers (especially Andy Hill) and listening to the worship music, which leads me to the next activity on her thankful list.
Worship Music - Faith has become more interested in worship music this year more than any other. I believe part of it has to do with her music integration sessions but also because we have been attending an Immersed Night of Worship at church held once a month. It's led by one of her favorite worship singers of all time - Monica. We've also been listening to more worship music at home as a family, especially right before bedtime. Her absolute favorite singer is Michael W. Smith!
Below is a video I happened to record when New Life's worship team did the music at the Healing Festival held in October. Faith loves watching it over and over again!
Stories with Mom - Not only is Faith thankful that her mom loves reading her stories, but she is thankful she gets to make up her own stories. This is something we just started and I'm realizing it's a great way for her to learn what an adjective, noun, verb, and other parts of speech are.
Basically, I write an outline of a story and have her fill in the blanks - sort of like "Mad Libs" (which I loved doing when I was younger and which Rob has never heard of!) I was inspired to make up our own one night after reading one of her favorite Arthur books, "The Mystery Babysitter." The book contained a fill-in-the-blank story on the back, and she loved it!
Here's an example of a story we made up about her dad:
My dad is very (adjective) happy. He likes to eat (flavor) chocolate cookies. He likes to drink (liquid) water, apple juice, and vinegar. One day my dad took a nap on the (piece of furniture) TV. He didn't wake up until (time) 6:30. He wanted to play his game when he woke up but his (body part) head was still asleep. My dad is (adjective) silly. I love him and he loves me.
Some other things that made this year's thankful list include:
Wheel of Fortune
Daniel Tiger
Apple juice
Cheetos
Prayer at the Healing Rooms
Her doll, Baby Allie (whom she just started calling her baby sister)
Faith certainly has much to be thankful for and I am glad she recognizes her many blessings. I pray that you, too, take time to thank the Lord for all of your blessings. For those who are going through challenging times this holiday season, I pray you will find true peace and joy in the midst of your struggles - the kind that is only possible with Jesus.
I am usually all for Faith trying something new. Years ago, though, I drew the line at adaptive skiing. I knew that Dreams in Motion does an annual event at Huff Hills (North Dakota's largest ski area), but I was too afraid to let Faith try it. I just didn't know how she would do being strapped down so tightly, especially with her high tone and issues with her left hip. At her day program, some of her friends had been going for years and Faith thought it sounded like so much fun. So, this year, I decided we should give it a try. Since there are only 20 spots available for this event, I got her registered the morning it opened up. Lots of fresh powder at Huff Hills As the event drew near, I knew I needed to get snow pants for her (since she had none) and make sure I had all the right winter apparel to keep her warm. That was also one of my biggest concerns is her getting too cold, which can cause her tone to increase even more. As the day approached, she was...
February started out as it typically does: very cold! This year, my parents and sister braved the weather to have a small get together for my birthday. Faith thought I needed another party like I had last year, but I told her 51 just wasn't as exciting! She also asked if her Auntie Tesa was going to fly up again. Faith really does love a good party! Accurate! Dawn, Faith, and Me Dad practicing holding his arm for after shoulder surgery The next day, my parents took me to IHOP , which had recently opened here in Bismarck, but I hadn't had a chance to go yet. It did not disappoint. My pancakes, eggs, hashbrowns and coffee were all perfect! I was glad to have gotten this meal in with my parents as two days later, my dad would be going through shoulder replacement surgery. We were all expecting him to be in and out on the same day, which is exactly what happened a couple of years ago when he had knee replacement surgery. I, along with my siblings, was shocked t...
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This past week marked a huge milestone in Faith's life - she has been at her day program for 4 years! I well remember how excited I felt when I found out that in order to qualify for the program, all she needed was to be 18 and have a high school diploma. I know that is not the case in some states. And in many cases, parents choose to have their special needs child in school until they are 21 and then after that they can attend a day program. For Faith though, since I homeschooled her, we were both ready for her to move on to her adult life when she turned 18! Faith at the Science Center with one of her day program staff After a few meetings with her case manager and day program staff, she was ready for her first day. But was I? She was excited when I dropped her off, but as I drove away from the building, I began to cry. Would she really be okay here? Would staff know what to do if she looked uncomfortable or seemed like she was in pain? Faith is verbal, but she canno...
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