It's Been a Weird Week

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Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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A Cold but Fun October

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As I'm writing this blog post, it is currently 25 degrees outside. With the windchill, it feels more like 12 degrees. That's cold for October. Even in North Dakota! Winter definitely seems like it's here. 

Earlier this month we had a historic blizzard that dumped 13 inches of snow on Bismarck and over 2 feet of the white stuff in other parts of the state. As a result, the public schools had their first official snow day. I was ready to give Faith the day off from her lessons at home, but she still wanted to do them!
First major snowfall of the year - in October! (Thanks Mom for the pic!)
It could have been a snow day for Faith, but she still wanted to do school!

It did warm up soon after and all the snow melted but the October blizzard created quite a mess for farmers and ranchers who still had crops in the field and cows in the pasture.

I was very grateful that we didn't have to go anywhere - for school or for work. I am still freelance writing from home. Recently, I began doing some freelance work for a local company called the National Day Calendar. I currently write their articles for the international days that get observed around the world. It's been a fun change of pace and much more exciting than writing about septic systems, roofing, and other mundane subjects!

Besides homeschooling and freelance writing, Faith finally started Inspire Collective again. It's her most favorite activity in the world. She has made some of her best friends through this faith-based homeschooling group.

Faith's class learning about plant cell walls in science.

One activity was making racecars out of LEGO. Faith's car ended up being the 5th fastest out of 12 cars! I was really thinking her dad should have been there for this event, but Faith and I actually did pretty good!

Along with enjoying science and STEM, Faith also likes her history class. They are learning about one of my favorite time periods, which is the mid to late 1800's. I am thankful that she watches Little House on the Prairie, which helps with her comprehension of the subject matter. 

This past weekend, we had a momentous occasion in our household as Faith turned 16! We ended up having a party in the lobby of our building with some of her friends and neighbors. Because we had to limit the number of people, my mom came up with the idea of having a 2nd party for just the family, which will be next month.

Despite the fact we already had plenty of people on our guest list, Faith continued to invite people in our building. One day we were sitting in the lobby and a lady who had recently moved in went to check her mail. Faith said hello to her, so she came over to where we were sitting. She told us she is a nursing student. (Faith always makes connections with the caregiver types!). 

Faith ended up inviting her to her party. Not only did Faith's new friend show up, she gave Faith a very nice card with money inside. It was so incredibly sweet. Everyone who came to celebrate with Faith was so kind and generous. She received clothes, nail polish, art activity kits, gift cards, and even homemade cookies! We are truly blessed to have such wonderful friends and neighbors.

 A few of Faith's neighbors even brought their dogs!
One of Faith's favorite families!
Chris and Faith with her beautiful birthday bouquet.
Faith blowing out her birthday candles.
She did it!!! Happy Sweet 16 Faith!

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It's Been a Weird Week

-
Image
Last weekend, Faith seemed to be struggling with a cold. On Sunday morning, I thought she had slept it off, but unfortunately, it hit full force that evening. Because she was so stuffed up, and had a lot of drainage, she did not sleep well that night. I tried to put her adjustable bed up as much as I could, but it still wasn't enough. Around 3 in the morning I put her in her chair where she slept for a few hours. After I put her back into bed, her sleep was still pretty disruptive. Finally, around 8:30 she had had enough and just wanted to get up for the day.  On Monday, we called to cancel her Tuesday therapy sessions. She was bummed about having to miss aquatic therapy and occupational therapy but took it well. I was trying my best to help her feel better by giving her nose spray (which she was actually asking for), keeping her humidifier going, and also doing this face mask thing that makes steam so that she can breathe it in. She calls it her inhaler.  On Wednesday, she ...
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Guest Post: Who Needs Sympathy?

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Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
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Every year, the one thing Faith wants to do for the 4th of July is go to the parade in Mandan. It surprises me how much she loves parades, considering the noise and crowds of people. About 20,000 people attend the annual 4th of July parade, and it's filled with very loud firetrucks, big machinery, trucks, and other kinds of loud noises. This year, there was also the concern that it would be more crowded than usual. This was due to the fact that part of the normal parade route was under construction.  Besides all that, the Parade starts at 10:00, which means Faith needs to wake up pretty early so that we can arrive in time. Neither of us had slept well the night before, so I was already concerned that she didn't get enough sleep to get through the long, busy day. I let her sleep as late as possible and prayed for us both to have enough energy to make it through the day. It helped that we could do her morning feeding enroute and also during the parade. She normally doesn'...
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